Geez, can I relate to everything you said, and I know we're not the only ones going through this.

Yup, went to ER from pain, and of course all they did was throw more pills at me and send me on my merry way.

I know what you mean about being tired of tests and dr's appts and holding on to that rope. I have a sticky note pad that says, "When you've reached the end of your rope, tie a knot and hang the f*** on!"

I've been referred all over he** too. Another doctor's appt tomorrow. Yay!

Glad you are here and talking about your situation. It helps to know you're not alone.

Gentle hugs

JD

sorry to say this but tests and more tests are more the norm than not. i hope you have insurance, if not there are alternative ways that others here can help you with more than i. i've been at this show for many years and , as it goes, i am also waiting to see my neuro for more tests(more MRI i think) come this friday......one thing..as long as they are testing, means they are still TRYING....i have had to learn more patience over the last14 yrs or so than i thought i could manage..but a testing dr. is a dr that at least is trying.......it is frustrating for us but also, i know this from experience, good , caring dr.s are frustrated also. i have been blessed with my dr.s..caring ones all (excepy maybe 2) and i have seen 11 dr.s in the last 4 yrs. almost all seriously trying to help. medicine has become so specialized that a goodhearted dr. will send a fella to many others sometimes in the hope that the other guy has some more pertinant knowledge for you in particular. the tests, also have constantly changed due to new findings. i am in one of the groups of patient that are still being "figured out" most of mine(blessed again) are truly concerned with "figuring me out".. i know not all are that way.but a glass half full view is that as long as they keep trying..they care......and glass half full is healthy for you even if nothing comes from THESE tests. so hang in, make sure your dr is a communicator and realize that truly......for some at least your condition is almost as frustrating(if certainly not as painfull and debilitating) to them as it is to you.would be nice if you got back here with results. the collective experience, knowledge and compassion on this site are amazing.
be patient, be positive and communicate with the docs. could be wonderful things.
PEACE................t

Welcome to the CP group.

The only ER trip for me was the night of the wreck. I have had doctors that I didn't care for and pretty much treated me like just another generic chronic pain, already got it figured out, patient. It gets frustrating. We have a group here that is, has, or will be where you are. I hate to say it but patience has been the key for me. Not that I have the right key chain all the time, but I try.

I'm sure you'll get some answers.

Best wishes,
David.

My hubby and I both made the rounds for 5 long yrs. I finally got an accurate dx abt a yr. ago, hubby just got his after 5 yrs and 7 specialist. Its a long road and so frustrating. They may be able to "fix" some of my probs. For hubby there is no fix but a dx means better chance for SS disability, validation and the knowledge to try to minimize additional damage! Good luck. Welcome to the group. You'll find it's a little easier to hang on if you have others supporting and hanging w/ you!!

david is so right patience and home remedies are the key to getting through each day there may be a fix there may be help or only partial help or none but u just got keep testing, keep researching releif and try live each day to its fullest under that day circumstances many days i got push my self through the pain to live that day but what to do keep on talking keep on moving and find bits of happiness on the way hope u do
hugs

Hi, Welcome
Yes pain is frustrating and you will get through it, it may be only a day at a time but just relax and get a doctor who you feel comfortable with. The ER will just give meds and kick you out the door and say good luck. Start documenting now it is important because you will have to take alot of test and being organized will help when you have to go to a new doctor or specialist.

I know the ER will not fix your problem, but you may get some meds, it does take awhile to get a proper diagnoses.
I went to ER twice when I tore my rotator cuff, because it was at Christmas time and it took forever to get into Doctors.
Thank God I had my daughter with me at ER because I only wanted antiflamatory shot, but could not get the words out because of the pain, The doc just seen all the meds I was allready on and thought the worse. my chronic pain meds did not touch the pain from rotator cuff tear.
Just keep on hanging on and you will get the help you need.
I wish you well and welcome!

Welcome, I'm sorry your in a bad spot right now. I've been on the end of that rope before. Don't let go and don't give up. Your not alone.

Hello And Welcome,
I think that every single person here can relate, we all have chronic pain issues, and we are here to get support, and to give support to those that needed the most.

I had several pain episodes that I had to go to the ER for, only one time did I dealt with a Doctor that thought that I was looking for "my fix". Anytime that an ER Doctor sees the word Methadone on the list of meds that I take, they inmmediatly assume that I am a junkie and that this is why I take Methadone, it drives me nuts!! That is why I rather wait until morning, or Monday if it's a weekend to have my pain management Doctor take care of me, I hate going to the ER!!

I hope that you receive the support that you need here, take care and again, welcome!

Tipper

P.S. - What is causing your pain??

What causing my pain is The Ehlers danlos syndrome, which is a connection tissue disorder. I dilocate almost every joint in my body. Right now i need to have surgery on my left hip .I have a bone cyst on the top of the femur due to all the dislocation and i have a labrel tear as well in the left hip. As of late I had a CT, Bone scan of my pelvis and a MRI of my lumbar. My othro guy for my hip sent me to a Trauma Surgeon and then he did another CT of my pelvis now he is going to send me to a Spine Ortho guy. The Trauma dr says i will need surgery on my pelvis s1 and l5 i guess. Most of my joint have had some kid of prcedure done to them , I not new to haveing pain I dont need to go to the hospital to have them but the joint in that is most of the time. Once in awhile i need more muscle relaxers so that they can help me relocate the joint.I have lot of braces and lots of heating pads and icey hot. I feel like im having a baby come out of my ass lol. Anyways this is the cause of my pain.

ouch sorry so much pain hope u find some releif on the hourney hugs

EDS is one of those frustrating syndromes for both patient and doctor. Since your connective tissue gets looser, the only thing that will help is surgeries to tighten your tendons & ligaments. Or, strengthening your muscles through exercise so the muscles will help hold everything together.

ER staff is equipped to handle trauma victims, ruptured appendices, gallbladder attack, heart attack, asthma attack, etc, and as you don't fall into one of those categories, you get sent away with meds and told to see your regular doctor. So save yourself the trouble and call your doctor instead. Sad, isn't it?

Surgeries to correct our ligament and tendons only help for a time because the will restrech. The things that help our joint is to have PT to strengthen our muscles. That only helps to a point as well. Braces to hold our joint togather. If i were to wear all of my braces at one time I would look like a freak .

wow, sorry to hear your dealing with this. I had a labrum tear in my shoulder, got that fixed and now my hip has one. so I know your pain.

but welcome to the group, and keep us up dated

hugs
sandi

i can totally relate to your frustration. i've never gone to the ER because of the pain, but i have considered it. i always talk myself out of it by thinking of the long wait, the contagious people, the medical staff that i don't know at all and the waiting. did i mention the waiting?

i'm so sorry that you are not getting the relief you need right now and i really hope that changes soon.

with care,
jen