Chronic Pain Group Community Group

This group is for people with chronic pain conditions such as back pain,fibromyalgia,CFS,etc.

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Brain & Nervous System
/ Chronic Pain Group Support Group

Out of control pain!

Kittencuddler
Kittencuddler

hi.. I've been on pain Medes for over 10 years, I've been on the same. Dose! I feel my body is used to it, I get no relief at all anymore! I just can't seem to talk to my Dr. I hate being on pain medicine! I hate going every month, the night before my appointment, I get so much anxiety! I guess with all the stigma that goes with being on pain medicine, is why I can't speak up, I have always been a shy person who could never speak up, still can't... im on 50mg. Fentanyl 8mg. Of Diluadid, 1 & a half of Ativan, and other medicines. Being. Sick & in pain 24/7 Really stinks! I've lost all friends, most family. I suffer from Fibromyalgia, IC, IBS, TMJ, Arthritis in both feet, ankles which is deformng my feet which every step I take. Hurts! I have arthritis in both knees, hips, spine, right shoulder, I have nerve damage in both feet and legs, I have degenerative spine, buldging disc, degenerative eye disease with macular, dermatitis of my skin, I have a tear in my right shoulder, numbing in my. Hand, and pain going down both arms. Migraines. Thyroid Graves' disease. Acid reflux, insomnia, scoliosis of lower spine. I think I've covered everything! UGH! I started getting all these things when I was about 21, I got it's when I was 9 but back then there was. No word of its! It doesn't show up on any X-rays, so at 9 yrs. I was called a liar! Sorry for just ranting! I. Really need to some. How tell my dr. How bad. I'm doing,  it's been. 4 yrs now I've been suffering so much more! I know after 10 yrs. being on same dose, my body has to of had to build up a tolerance... any suggestions on how I can approach this to my Dr.? Thank you for listening if you got this far... im so tired of not being able to go out! Im in my adjustable bed all day! Trying to get comfortable! I have to sleep with the back of bed half way up due to the curve in my lower back, hubby and I have not sleeper in same bed in about 10 yrs! Been married for. 22 yrs this feb. 17th. 2017 im so miserable! So tired of not having any friends! My mom is my best friend, but she suffers from many problems. My husband I don't think truly gets it, or maybe just doesn't care. I just want to feel better, get out, enjoy life. Not have to depend on everyone! I can't drive, haven't in about 8 yrs. ok, I will shut up now lol... I pray all who are suffering will find a cure or find a medication that will help. Thank you! Big soft hugs to all..

OlderCPer
OlderCPer
So, you were pretty right on track. Your body has become physically dependent and tolerant of your medicine dosage and it most likely does not cover your pain.

Here's the bad news, you are on the strongest narcotic medication there is. Fentanyl is 100 times stronger than Morphine, and you are on a very high dose of Fentanyl, you said 50mcg I'm assuming every 3 days or 72 hours? On top of that you get 8 mgs of Dilaudid each day for break thru pain. Here's the problem, your Dr. can't increase your dose, because your maxed out. He'd have to hospitalize you to make sure your Central Nervous System didn't shut down.

For the conditions you have, Dr.'s don't normally prescribe the doses and medications that your on. You have progressive conditions, most of which don't react all that well to Narcotics, and you've been giving the strongest Narcotic at a high dose....there is nowhere else for you to go medicationwise.

At this point all your Dr. could do is put you on a medication holiday, wean you off the Fentanyl and Dilaudid, so he can get an idea of what your real pain level is and then put you on more appropriate medications for your conditions. Nerve pain medications, Arthritis medications, and lower dose/slow acting narcotic that works better on your conditions. Other than that you really don't have any other direction to go.

Sorry that your in this place.

K
silverlady569
silverlady569
I thought I had it bad until I read your list of problems! I was also on Fentanyl and oxycodone. My Dr., as my pain grew, reduced my pain medication. I finally got fed up with begging for meds every month and I quit cold turkey, I didn't quit without help though, I had medical marijuana. I was surprised by the results. The marijuana worked as well as the drugs, side effects a lot less and the pot doesn't get me "stoned" I take capsules (infused coconut oil). I hope your state has legal medical marijuana, you can always go back to the doctor! I hope this helps a little bit.
By the way, I have osteoarthritis, all joints except feet. Both shoulders are destroyed. both rotator's are torn and the balls are worn down and slip out of socket. I also have an above the knee amputation from having a knee replacement get infected. Phantom leg pain! Fibromyalgia also. Carpel tunnel both hands, with nerve damage in the right.

Please hang in there, keep up with distractions and support groups.
JenLab
JenLab
I feel your pain! Most people think I’m a liar when I tell them my story because I’m not even 50 and I have a story similar to yours! Hang in there at least we are not alone! I just found this site! I thought I was all alone, apparently there are more of us out there! Sorry for your pain! We may not be able to beat the pain, but I try to put a little lipstick on everyday because I’ll be damned if my pain is gonna take that away from me!
meggthevirgo
meggthevirgo
my drs prscribed me painkillers and called me a liar. I went to one and I was missed dignosed with lupus but this whole time I had an iummune thing that makes my joints bones and muscles be attack by my body itself I had no idea. I triede going vegan and gluten freeand my pain was cut in half some days are good and some are bad. don't give up, go to someone that will listen cause I didn't stop till some one finally listened to me. ive had back injections and now only eat vegan things and its helped. and ive tried everything cupping, dry needling, acutuncer, pt, ect. im only 19 and have been dealing with chronic pain since I was 12. if u every wanna rant feel free to message me!
LBunnies
LBunnies
I stopped all the prescription pain meds I was on for over 8 years and began to drink Kratom tea instead. The Kratom works better on the pain than the opioids ever did, but nothing gets rid of it all. I have to keep my mind busy away from the pain or I go down a very dark hole. I crochet daily, I can afford a few bucks for yarn and it keeps my mind busy.
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