Chronic Myofascial Pain Myofascial Pain Syndrome Community Group
This group is for people who have Myofascial Pain Syndrome- anyone with a diagnosis of MPS is welcome to join. Our mandate is to provide support, information, and friendship to people with MPS.
Just wondering if anyone else is REALLY sensitive to even tiny changes in their posture? For eg, we went out for supper last night, and the floor was (a little slanted)! Just a little, but there was a definate upward slope, and as a result my posture was just the tiniest bit "off". Not hugely- but enough so that I was quite sore afterward. It's not just sloping floors, but also things like I HAVE to sit in a good chair (one that is hard, flat etc). I can only dream of sitting on couches (not enough support etc), and public transit is a nightmare for the same reason. I even have trouble going to the hair dress, because I can't sit in their chairs (they tilt a little back and don't have any back support- as well as the fact that I can't handle people pulling hard on my hair as it jars my neck). Does anyone else deal with this problem? How on earth do I deal with this? Should I have left the restaurant when I noticed I was getting sore? (I just might have asked for our food to be wrapped up if it had been just my hubby and me- but we were also with a friend, and I didn't feel comfortable doing that...)
Blue
Blue
deleted_user
The hard part is you still want to enjoy going out. I am just experiencing the new back pain but I don't trust anyone near my head. I only trust my sister and my husband to dye or cut my hair. I am scared of what others might do. Just by touch, it can hurt. Just putting blush on in the morning hurts. I wore a pink wig for halloween all day and the pain from that was enough to send me thru the roof. I understand so much of what you are going thru. We suffer so much as to not show the pain, but at the same time we need others to understand. Once my husband finally told his group of friends what I am dealing with they are just so different. Nicer almost. They at one point thought I was just a snob. But they had no idea what was going on for two years. Can you tell my hubby keeps to himself ALOT!!!!!!!!! Driving is difficult. I wish the kids were able to take the bus to and from school but we live to close. We may have to put them in a different school just so the bus can pick them up. The only problem is then I will be more of a antisocial person. I am rambling...Sorry girl that this is our lives....I am here with you!!! HUGS DC
deleted_user
I agree wtih both of you. I have a lot of problems going to the hair dresser. To sit there for long periods of time and get my hair cut. I had it dyed a few months ago and I paid for it for two days. As far as getting my hair washed in one of the chairs that hurt even more.
karinbendel
I too, have myofascial that is pain on the top and sides of my head. It is as if someone were squeezing my head. Nothing really helps other than a topical ointment for muscle pain on my neck. My pain is from a whiplash car accident. I have tried trigger point shots and they did not work. I don't take medication and do exercise a lot, including walking and have learned to ignore pain. It is worse in the summer. Anyone else out there fight myfasical head pain by exercise? I would love to connect with someone. Thanks, Karin
Candicelee
I experience everything everyone has mentioned. Sigh.
Join the Conversation