Hi Tommy,
Congrats on the PCRU. :-)

Thanks....I just wish that it came with more of an upside. Nothing changes....just keep taking the pills and all will be ok. Too many days just feel like my wheels are spinning in the mud. Yes.....I am alive and the out look is good. But what happens if the health insurance disappears? Then the medicine is so expensive that we just have to take our chances....This disease sucks.

HI tommy23,
Don't loose hope. There are trials underway reviewing stopping your TKI when you've acheived 2 years of PCRU. They are also looking at other ways of defeating the stem cells, so a cure may be just around the corner.
I'm currently working with my doctor on a TKI cessation trial. I'm still in the first six months of stopping, so can't get too excited at the PCRU results from my first blood test.

Tommy,
start looking now for companies and even the mfg also talk to your doctor about free samples and even a credit card to pay for the meds
I say search now so if insurance runs out you are ahead of the game
I urge you to not take advantage of any help you may get until needed
Some do the sample and stuff just to get out of the co pays they have
I understand a few cases that pennies are pinched but some can well afford the co-pay
You can even do on line searches do not take a card you have to buy and do some searches even on here and other cml sights

Congratulations on making it to PCRU and I agree with Wombat5. While the politics of big pharma/money play a big part in all R&D, TKI's are a major breakthrough, and the trials are increasing in frequency and breadth, so don't give up on a cure. Guess what my new favorite research topic is now that I can't work around patients (for my sake, not theirs)? You guessed it! I plan on personally kicking this and every other cancer's butt I can get my hands on. ;)