support groups for CLL
I am looking for a face-to-face support group for CLL in the Long Island, NY- NYC area- please let me know if you are aware of any in the area or if you live in the area and would be interested in forming one with me. The only ones I am aware of include "caregivers." While they are helpful, I would love to speak freely about my fears without upsetting or worrying my husband anymore than I already have. Any info is appreciated- thanks
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I started treatment for CLL on October 26, 2015. Lymph nodes were so swollen in my neck that it was almost even with my ears. After only 3 weeks on ibrutinib, my neck was normal size as well as under my arms and I am sure all over my body.I am wondering if anyone else has been given this treatment, and if so, were there any side effects. The only one that I have had is high white count which...
I was diagnosed Cll at age 44 about 9 months ago, I was watch and wait, my WBC is 35,000! I have been feeling really bad about last 2 weeks severe headaches , body aches,walking issues and knee and leg and hip pain, could this have any thing to do will my Cll getting worse or progressing??
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