Hi there. Sorry you are going through this. I’m newly diagnosed and my doctor already wants to do a bone marrow biopsy. Did you mean you were diagnosed 4 years ago and they are doing your first bone marrow biopsy now?? Have you done it yet?? How bad was it!! Do you know what treatment your doctor wants to try yet?? I see your post is from May, so you may already be getting treatment. If so, how is it going? As a newly diagnosed, I’m very scared and just found this site. I hope the treatment is helping you. Take good care of yourself!!

When I was diagnosed 4 years ago, I was Stage 0. I jumped from Stage 0 to 2 this year. I had the bone marrow biopsy in May and it wasn't too bad. They biopsy the bone close to in your pelvis close to your spine. The doctor left it up to me to decide when I start treatment and as I am not in much pain I am holding off for now. I see my doctor again in September.
How comfortable is wearing a bra for you? I find if I have trouble wearing one all day anymore.

Hi I have been newly diagnosed with this , and have so many questions, Doctor tells me I can live for a long time, I am at stage 0. Its scary to know you have cancer , and wondering whats going to happen.

Hi guys!
Been on gleeec since the doctors found out this med worked on me. .
Once in a while I get that bone marrow biopsy just to make sure all is good.
Been diagnosed about 15 years ago.
Sometimes the doctor takes some blood out (phlebotomy), and it relives some head aches