Hi,
I'm sorry for the delay in response. For some reason this message board is not very active. I check once in a while and saw your post. I have been on watch and wait Stage zero for 4 years this coming September. I hope everything goes well for you. I know what it feels like just to be on watch and wait and can't imagine how you feel to have to start treatment. My oncologist is very optimistic about the treatments that are out there. I work at a hospital and my former chief of staff is an oncologist. He said there iare many promising advances with CLL. I think there is another website called CLL forum that might be more active. I'm sure all will go well for you and your emotions will level out. Take care. Please post again and give updates. I will keep checking to see how you are doing.

Thank you for posting, I have some good news and bad. Good news first they have my stem cell transplant on hold. and the imbrovica is working so that is good. but again it is a wait and see how long I will be on it. My levels keep going down good.
But we are all in prayer and it is good to know there are options for us. I try not to get down, it does not help anyway. I am blessed in so many ways. So I need to just keep the faith and know I am in Gods hand. I'll try the CLL forum to see if anyone else is on the imbrovica. Thank for your post.

Hi, I am new to this site and would like to find friends to talk to about
CLL. I found out I had it July 10th of 2015. My WBC was 17 then and has gone up to 28. An herbalist friend thought I should try herbs to
bring the WBC down. They went down to 24.8 last blood test. I don't
know if it is common for the count to go up and down from month to
month. I would like to know if yours or others has had count to go up and then down. I want be having another blood test until middle of
January.

I was diagnosed in May of 2013 and am still Watch and wait....my wbc is going up (now at 81) and rbc is trending down...although still at the low end of normal. Doctor said that if trend continues I will need to do something in 2016. I'm 57...and my biggest concern is life expectancy. All that I read says 10-14 years....I'm assuming that includes those that are diagnosed in their 70's and 80's. Any thoughts?

Mountainmoon...I also have cll in watch and wait....would u mind sharing info on the herbs you take...thank-u

Hi,

I was just diagnosed too about t month ago. I heard there was a clinical trial that had some success with Green Tea extract in the amount of 2000 grams per day. I ran this by my Dr. and she had heard of the study and said it may be a good idea. We can only hope!

I have been taking Green Tea Extract 2500 mg since I was diagnosed over 4 years ago. I'm still at stage zero, watch and wait. My wbc has slowly crept up to about 41,000. My platelets and rbcs, kidneys, etc. are all normal. I know it's hard not to get down in the dumps about it. I also know a positive attitude does wonders all the way around. I try not to read to much about life expectancy and other treatment info. It's too scary and doesn't apply to everyone. One day at a time.

I was just diagnosed and need friends to talk to about this.

I was diagnosed in 2012. WBC's continue to rise, in Watch and Wait. Noticing some bulky lymph nodes in my neck, but have also been getting weekly neck and shoulder massage...This has me nervous. I need someone to talk to also.

my counts were slowly going up, reached a high of 29 over about a four year period or so. We moved back east near family and I don't know if it was the pleasure of being near them again or the Vitamin D and Green tea extract, but my counts dropped, now down to 19 and holding for a year. I do think they are developing new and better treatments, but it wouldn't hurt to take the D and Tea.

And Paul, don't think about those life expectancies too much. I scared the crap out of myself looking at all the info. There are very good odds you will live a full life and get knocked off by something else. Yes, some sorts of CLL are more aggressive, but they are in the minority. I pray you all have the "good" kind.