Chronic Lymphocytic Leukemia (CLL) Support Group
Chronic lymphocytic leukemia (or "chronic lymphoid leukemia") CLL, is a cancer in which too many lymphocytes (a type of white blood cells) are produced. CLL is the most-diagnosed form of leukemia in adults. Men are twice as likely to develop CLL as women, however the key risk factor is age: over 75% of new cases are diagnosed in patients over age 50.
In Dec 2009, after a routine blood test for a normal physical my Dr called and said that my white blood cells lymphocytes were slightly elevated but not to worry it is probably only a infection somewhere in my system and that my body is trying to fight it. He suggested that we do another blood test in Feb.
In Feb the count had risen again and he called and we discussed it. I started researching on- line and came up with CLL.
He did not agree or disagress but said we would W&W. In March I went to see him again and again I was very slightly elevated. After discussing with him for a long time he suggested that I see a specialist. Which I did. My counts were still under 5000 at that time. The specialist did more blood work and said that at that time I did not have CLL but something call MBL type CLL.
In June I hit a count of 5900. Still not diagnosed as CLL but with MBL.
My internist who is a real gem, called to see how I was feeling and I told him that my count was up and I was feeling real down. I asked me to come in and see him ( after a half hour on the phone). I did- he sort of snickered about the MBL- (which is what he had said the specialist would say). I thinks it is all semantics.
In Aug I had another blood test for my internist and the count has risen to 7000.
Still considered low but rising.
I have an appointment with the specialist in Sept.
Although I feel great physically I am suffering emotionally, crying fits that just seem to come on and I feel like I have lost my smile.
In Feb the count had risen again and he called and we discussed it. I started researching on- line and came up with CLL.
He did not agree or disagress but said we would W&W. In March I went to see him again and again I was very slightly elevated. After discussing with him for a long time he suggested that I see a specialist. Which I did. My counts were still under 5000 at that time. The specialist did more blood work and said that at that time I did not have CLL but something call MBL type CLL.
In June I hit a count of 5900. Still not diagnosed as CLL but with MBL.
My internist who is a real gem, called to see how I was feeling and I told him that my count was up and I was feeling real down. I asked me to come in and see him ( after a half hour on the phone). I did- he sort of snickered about the MBL- (which is what he had said the specialist would say). I thinks it is all semantics.
In Aug I had another blood test for my internist and the count has risen to 7000.
Still considered low but rising.
I have an appointment with the specialist in Sept.
Although I feel great physically I am suffering emotionally, crying fits that just seem to come on and I feel like I have lost my smile.
Richard Tomlinson (tworic)
thinking about it. It is constantly on my mind. Next set of blood tests are scheduled for the end of Nov with Dr visits beginning of Dec. If the counts have gone down again of remained about the same I think that I will start to relax and truly believe that the tea is helping. Until then I will continue to pop my pills ( feel like a druggie) and hope and pray that they are doing something. I sure hope that we are in this for a LONG LONG RUN.....
Take care of yourselve and enjoy your tea. Let me know the good news after your next tests. You probably can do the tests yourself if you work in a lab. I would probably be doing them daily- I am so nuts at this point.