I got the most answers with a rheumatologist. I find that most don't require a referral to see them either. I found the docs who treat allergies to be the least helpful overall. It's all immunity related, but the docs are so very different.

I found that the worst Dr I have ever been to with this was a rheumatologist. I have heard both extremes re this type of Dr - either they are really helpful or they are horrible - no in between from any patients I have ever talked to about this.

The best Drs I have found re CFS are the integrative drs (those who are willing to use both traditional western medicine and to also try alternatives)......this is bc they seem to be more open to believing that CFS exists and bc if they do think that you have it they are more willing to try a bunch of things rather than just push meds on people (they are willing to try those, too, but they are not married to the idea that drugs are the only way to go, and since many people with CFS are very sensitive to meds, they can cause a lot of us big problems)

I would try to find a doc who is an expert in this area it is rare to find a doctor who understands or even acknowledges CFS. If you go to the website for Chronic Fatigue Immune Dysfunction Association you can find some referrals. I saw Dr. Klimas in Miami,FL she is great but not covered by insurance. Seeing a rheumy may be helpful to rule out other diseases that are similar such as lupus, RA etc. and seeing a neuro to rule out MS if you have alot of neurological symptoms. Good luck!!

I also am having a hard time accepting this as permanent. I haven't been well for two years but was officially diagnosed with epstein bar/chronic fatigue this past spring. It's just so confusing...so many different symptoms, feeling fine one minute and terrible the next, not understanding what's going on in my body, etc. It's tough. I have been to several doctors but not a rheumetologist (sp?). I wish we could find one to help us.