Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
I couldn't sleep last night, so I listened to the radio. I was listening to the Jim Bohannon radio talk show at about 5:30 this morning when Bohannon talked to 3 people (a doctor, a person who has CFS, and a writer) about CFS. They did ramble a bit, but the main points of the story .......... the points I got anyway ....
CFS IS A REAL DISEASE AND NEEDS TO BE TREATED AS SUCH! The amount of money that goes into studying and treating CFS is a pittance compared to what is spent on thousands of other diseases, and we need to give CFS more attention. Most doctors know very little, sometimes nothing, about CFS.
If I heard that, out here in the middle of nowhere, maybe a few other people heard it, too! A journey of a thousand miles ....... We walk slowly, but are we walking?
If you want to listen the session (about 15 minutes) and/or give me your feedback, go to
www.jimbohannonshow.com/pg/jsp/jimbo/audioarchive.jsp;jsessionid=7A3BB7C
CFS IS A REAL DISEASE AND NEEDS TO BE TREATED AS SUCH! The amount of money that goes into studying and treating CFS is a pittance compared to what is spent on thousands of other diseases, and we need to give CFS more attention. Most doctors know very little, sometimes nothing, about CFS.
If I heard that, out here in the middle of nowhere, maybe a few other people heard it, too! A journey of a thousand miles ....... We walk slowly, but are we walking?
If you want to listen the session (about 15 minutes) and/or give me your feedback, go to
www.jimbohannonshow.com/pg/jsp/jimbo/audioarchive.jsp;jsessionid=7A3BB7C
http://openmedicineinstitute.org/
http://theblueribbonfoundation.org/
Doesn't it amaze you that the doctor on the panel, when asked, said that CFS was "mentioned in passing" when he was in medical school? They aren't teaching doctors about this illness...to this day!!
Also, and the saddest thing of all...they said the age range for CFS/'ME was from 10-70. Imagine the young ones with this illness. Without their doctors/pediatricians being educated on CFS, I'll bet many children are being misdiagnosed as having "mental issues" just like us! Don't they tell us we're depressed? Maybe the doctors are labeling these poor kids as lazy, or with ADD, or who knows what.
Pilot, I take this as a good sign. That in a small town, near where you live....CFS is being talked about. It's coming more and more to the forefront of medical conversation as of late.
It also interested me that the columnist knew more about the devastation of CFS than the doctor on the panel did. That just goes to show you.....one of them is really listening to the patients suffering from this illness....and it ain't the doctor.
Lord, help us!
But most of the doctors in my area still insist that it's not real. Reminds me of the old saying that you can lead a horse to water but you can't make him drink. Reality is apparently not considered relevant in the community where I live.
I tried to tell a local doctor about research from the NIH. He said CFS just makes you a little sleepy now and then and has no other symptoms. He then said that everything that comes from the National Insitutes of Health is "misinformation".