I relate to you completely. For the past 3 years, I feel like I haven't been able to be who I really am, because of all of the outrageous symptoms that my body has... I have finally accepted that this is the new way of life for me and to deal with it as best as I can. Everyone of your symptoms is what I have as well. I was also told I have anxiety/depression... All I can say is that you need to keep trying and not stopping until you find a good doctor who will care and give you the tests you need in order to get a proper diagnosis. Have you had any tests done?

Your story is very familiar to all of us. The worst part is the not knowing what's going on or what to do about it - and the sheer frustration of suddenly not being able to do things that were no problem before.

My story is that I've been suffering from this for about 30 years now. I was one of the lucky ones, getting my diagnosis within a couple of years of the onset of symptoms - after having been labelled a hypochondriac by one doctor and sent to therapy for depression by another. He thought the depression was causing the fatigue, but the psychologist informed me that it was the other way around.

The main thing I want to stress to you is - don't push yourself. It took me years to learn that and in the process I made my condition a lot worse. Trying to push through the fatigue will trigger a flaring of the condition which we refer to as a crash. Many of us have gone through the crash and recover cycle. Each time I did it, I recovered a little less than the previous time, leading to an overall worsening of my condition.

As for the doctor, depending where you live, there are people on the site who might be able recommend a good one in your area.

As sorry as I am that you've had to reach out to us, welcome to the site and know that we are all here to listen and support you.

That's how I feel about my anxiety. I'll feel perfectly happy and stress free and then one of my symptoms will hit, I'll get a crazy dizzy spell or something and next thing I know I'm stressed out. But I know that if anxiety has any factor in this that it's my symptoms causing it.

Right now my head feels more clear than it has been lately but my body is killing me! I'm achy all over. I feel like I'm getting stabbed repeatedly in my back / sides and my limbs feel like jelly.

I'm trying not to push myself but I need to work right now to support myself. And I feel like staying with this job ( no matter how strenuous it is) will be easier than searching for a new one.

I just found a website that list some doctors who are familiar with CFS / ME in my area. I'm going to see my neurologist on Monday and then if that doesn't work out I'll make an appointment with a new doctor.

I really appreciate the both of you sharing your stories and listening to mine. I'm just so frustrated. I just turned 22 this year and figured out what I want to major in and now this happened

Hi, honey. ME/CFS symptoms can bring on anxiety because who wants to ffel like they are spaced out and about to pass out? But don't let docs tell you that it's just anxiety and nothing more. I had a doc say, "This is more about your nerves than your nervous system." I was thinking, "Man, this is not feminine hysterics or something. These are real symptoms." So, I got a new doc. Best of luck to you. Keep looking for help. Much love.

Thank you! I go back to the neurologist on Monday and I also see my Primary on that day. Hopefully I get more answers.......if not I have two more appointments lined up. I am determined to find out what's causing me to feel this way.

My neurologist made me feel the same way! He asked my age and made me feel like a little kid who doesn't know how to handle stress. He was all "you're 22, you're in college, it's life!"

Thank you again and best of luck to you!

I totally know how u feel, Im still in the process of being diagnosed- many dr apts and testing until they get to the bottom of it, it gets even more draining when its like they don't take u seriously, but don't give up, the body is a complicated piece of equipment and drs are human, they make many mistakes- so trust your gut instinct and keep fighting fro yourself, and for answers. Best of luck to u:)

Keep fighting/searching. I became sick in 2009 and wasn't officially diagnosed with CFS until 2012. I was initially told it was "just arthritis" and prescribed steroids, which only served to make me gain weight! I'm taking a break now, but I plan to resume searching for a doctor who can help me improve the situation.