Yes, I understand. It took me 5 years to get a diagnosis. It was one of the most frustrating times of my life. Doctors tend to be so difficult with us. They seem to have very little experience with this. Some people on DS have had some luck with naturopaths. I think one positive about naturopaths is that they tend to treat you like a human being and to believe your symptoms. I also have the tingling. That may be Fibromyalgia. Also, I have that horrible feeling that my legs are going to give way underneath me. That has happened a few times, but mostly it's just that feeling that I can't take one more step. Many blessings to you.

It took me 7 years to get a diagnosis. Not to depress you, but that was my journey. I was pretty clear after 2 years that I had me/cfs. Out of 12 health professionals I went to, two were very helpful. One was an integrative doctor and the other a naturopath who specializes in cfs. Best of luck on your journey. take care of yourself!

Yes, unfortunately most doctors either don't believe in CFS and Fibromyalgia and fail to see the bigger picture or they just don't care enough to look. In many cases there's also a gender bias towards women, that their symptoms are due to stress. You need to keep pushing and have the willpower and patience to continue until you find a doctor that cares and understands your problem.
Take care :)

The local neurologist thought I had Myasthenia Gravis but the major test, UCDavis Medical Center in Sacramento where I had the EMG, showed I had no muscle or nerve disease. Rheumatologist there said if I had Fibromyalgia my family wouldn't be able to hug me. and not have intermittent pain. He didn't think I had it or that this is autoimmune issue. I've had MRI on upper spine, MRA, CT, tons of blood work.

I keep getting dressed in comfortable "Saturday " clothes every day trying to keep fighting for my dignity. Somedays it's not until almost noon but that's rare.

I don't feel like I've knowingly done anything that would warrant such symptoms. I'm just the typical American and haven't smoked, drink, illicit drugs or relations. to bring on anything that I'm aware of.

Sweetie! We are SO with you. Don't give up, please! Try the Naturopath! You WILL find a doctor that will figure this out!

Sometimes we have to go into the doctors office and tell the doctor that with all the symptoms and negative test results that YOU BELIEVE that you have CFS/ME. Let them know that you are educated about it. Very often, the doctor doesn't know about CFS. YOU know if more than they do!

Hang in there! Pace, don't push. See the new doctor.

I pray that you will find help soon! In the meantime, you have found good support, right here. We know how sick you are!

Big hugs! xox

I treated with a Naturopath for over 3 years. The root of my CFS was the Epstein Barr Virus (EBV) and the Cytamegalovirus (CMV) and the ND said that the only way to make it go dormant again was to strengthen my immune system, so she was working on that through acupuncture and chinese herbs. Along the way, I was diagnosed with Lyme Disease (through Igenex labs) and just this year diagnosed with CVID. The CVID seems to hold the key because it is the immune system not making antibodies to fight the viruses. I will be starting Immunoglobulin infusions in a couple of weeks. Others that have CVID say they feel much better after getting the infusions (which will be lifelong). You might want to consult an Allergy/Immunology physician that is familiar with CVID and get tested. Have you been tested for viruses? And Lyme?

I've not been tested for any viruses. I haven't had any flu like symptoms in over 4 years and this started 2 years ago. I don't recall any bites with bulls eye. Does that mean anything?

Thanks for the support. I wished when I was in Walmart and the last two motorcarts were taken, I wished I had asked the aquaintance who stopped me momentarily on my "hurry" to the pharmacy, (Unrelated to current issue) I wished I'd asked her for help. as I was in little shape to be walking and standing and maybe she could have helped. She had a wig on blonde when she used to have black hair and we both barely even recognize each other at first. She probably realized I wasn't having a good day. Very few people even know how I've been struggling so I didn't think. I'm tired of feeling so tired. EE

Yes. Hang in there. You've gotten some very good suggestions on here and I would encourage
you also to check out the naturopath. (why spell check keeps faulting me on this spelling, I
do not know). Anyway, that's who diagnosed my CFS and helped me with other things besides.
Like, anything else, they're not all created equal. So I hope you get a good one. .