Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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Spaced out - off-balance

Ruby30
Ruby30
Hi everyone

I have had ME/CFS for going on 3 years now and just in the past month or so, my symptoms have increased and I had my worst day ever a few days ago.
when I crash now I have a new symptom of feeling really spaced out and off-balance. I still feel spaced out today, almost like I'm on drugs, feel a bit slow.

I guess this may be classed as brain fog???
Does anyone else get this? and did you get it right from the start of the illness?
triunfadora
triunfadora
Yes, my friend. I'm sad to say that happens to me at times and has been a part of this illness from the beginning for me. There have been times when I have felt drugged out and my speech was slower than normal. I can feel myself trying to not let it be noticeable, but I think people notice. It can be very frustrating in public because when I feel that way, I would prefer not to talk at all than to appear so out of it. It's one of those things that is really hard to explain to people, so I avoid having to explain it whenever possible. I become quite clumsy during those times as well and I am likely to trip or lose my balance.
Nina1959
Nina1959
I hear you. On those days it almost seems like we've had a little stroke or something. It can be scary.
DarlaC
DarlaC
This is a routine crash symptom with me. If I'm sick enough to be housebound for the day, dizziness, and clumsiness go right along with it. I realize that I am impaired and would never try to drive. At least I KNOW when I am in this bad shape and will decide to stay home and be clumsy and off balance without subjecting anyone else to my unfortunate state of mind.

This is one of the things about crashing that makes me crazy! Feeling like I've lost control, and can't move or think properly. I've learned to accept it for what it is, rest on those days and not try and push myself. That never works. Our bodies and brains....need rest!!!