Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

1,560 Members

7,095 Posts

0 Online

dbergstrom 10/15/2016

I had a very good response to florinef, but I can't remain on it.

I've met someone using beta blockers with a lot of success and am looking to try that. Anyone with any experience?

Also a word of advice. I've met a ton of people who have improvements(not a cure) drinking lots of nuun tablets a day.

triunfadora 10/15/2016

I was just put on atenolol for POTS. It has lowered my pulse. I can't say I feel better yet. I keep zoning out really badly. I'm not able to read or sew because I zone out for like 2-3 minutes at a time. I'm hoping it goes away. I tried Florinef and had a terrible time with it. I felt so dehydrated and just felt worse overall. I'm glad you responded well to it. Why can't you stay on it? I thought it if worked for you, you could keep it up. Thanks as always, David, for your good information. Much love.

dbergstrom 10/15/2016

Thanks Heather! I have a fungal infection in my lungs, and it specifically says do not take if you have this. Additionally, I have many medications that start off successful and then I crash and my spider sense was tingling.

I was happy to hear you found a better doctor in regards to neurological thangs. I'm sorry you had to deal with that doctors incompetence.

Also. Has anyone tried compression garments? I'm very willing to try these if anyone has been met with success

triunfadora 10/26/2016

I just saw this, David. Forgive me for being so late in responding. Yes, I have tried compression socks. They help some, particularly if I have to have my legs down for a long time. I always wear them when I go away somewhere and I'll be in a car or a plane. So, you still have that fungal infection. AGH! That's terrible!

DarlaC 10/27/2016

Watch out for a tendency towards depression while on Beta blockers my dear Friends!

Just a FRIENDLY FYI for my CFS fellow sufferers! xox

Join the Conversation