Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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nickyj18022002 01/02/2008

Would be very grateful if people could share their experience of best ways of pain relief. I can sometimes get my pain to manageable levels with the combination of pills that i take but I hate taking them because I know they cause harm in other ways. I take tramadol and co-codamol in pretty high doses and dont like the fact that they are mind-altering drugs with dependency risks and also do a lot of damage to stomach, liver etc. Has anyone found a better way that actually works?

deleted_user 01/02/2008

I take 30mg of codeine. max dose of paracetamol and ibuprofen. which is th maximum dose they can give me. it doesn't work.
Honestly i find the best apin relief i get is when im in a hot bath. relief lasts only as long as im in there.
sorry i cant be of more help!!!

xxx

DarlaC 01/02/2008

Hi Nicky. I can't take pills either. They simply make me sick. What Ibuprofen does, is the extent of the relief I get. The hot bath, yes!!!! The heating pad? My new best friend!

nickyj18022002 01/02/2008

thx - the heat is good, i use various heat pads and patches. Will try the hot bath too. I sometimes forget that I should be grateful for the temporary relief I get from those and stop searching so hard for more permanent solutions. Thanks for reminding me!!

deleted_user 01/02/2008

I take vicoden in the evenings when my pain is bad. I try to hold off until then because it tires me out. For me, moving around can help. Or, lying still can help also. I can't take Tramadol, it causes migraines in me. Good luck!

deleted_user 01/02/2008

hi,i to have struggled with medication,and cant find anything that works,you should be wary of tramadol ,it actually made my symptoms worse in many cases ,much worse !!

deleted_user 01/04/2008

pain is the worst. I agree with Rachee. For me, a hot bath can help immensely. Sometimes moist heat. A bedbuddy from a drug store. I have suffered over the years with fibro and endometriosis and back problems and neck. I know a lot of pain. Dilaudid helps a lot as it is morphine but it drops me to the bed. Vitamins help. Fish oil and essentials fats. Coconut oils.

deleted_user 01/04/2008

I take tylenol from time to time, I can't take pills, I am in recovery.

deleted_user 01/05/2008

I was recommended by someone on this site glucosamine gel to rub on my painful legs. Its not a symptom I get so regularly anymore but when I do I find the gel really works

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