Yes, in fact I woke up this AM with what I call sleeping pinkies...took about 3 hrs to go away. Neuro and ortho say it's inflammation that settles in during the night in the nerves around our trapezius muscles. I also get it if I've been driving for more than about 45 min without a break.
I might also suggest if you aren't taking b-vitamins that they are very good for nerve issue and circulation, especially b12 and b1.
Until then, I don't know about you but it helps if I do dishes or take a bath/shower. Warm water and all.

Yes. Ever since I became ill, 20 years ago...I have experienced numbness in strange ways. Oh sure, everyone experiences a foot "falling asleep" or their hand or arm, but with this disease it is very different. For example, when I am sitting, I frequently experience the front of my shin going numb or just the back of my calf falling asleep. Lately, it is the back of my shoulder blade and the inside of my underarm and underside of my bicep. Constantly. Thanks Nina, I might have to try the vitamin B.

There's also something called Raynaud's phenomenon (which isn't too uncommon with CFS) that makes your extremities go numb with cold or stress. Mine only happens with cold, but I just saw my doc about it and he basically says it's nothing to freak out about.

Is it only your fingers, Kate? I know that such strange things happen to us. It could very well be a circulation problem. Our hearts don't always pump sufficiently and our extremities become cold, or numb. Still, rather than guessing, I would ask my doctor! It's a safer bet than us guessing.

I've had numbness in my fingers and my toes, but I'm always cold as part of my CFS and heat warms them right back up.

I always call the doc. when something new pops up!! He almost always calms me down!!!

Let us know what you find out!!! xox

Thanks for all the helpful advice I am going to try taking the vitamin B and taking lots of hot bubble baths.

I went to see the doctor Thursday as I have stupidly really over done things and made myself pretty sick! I mentioned the numbness in my fingers and she said it was nothing to worry about and more than likely a to do with the illness. She said sometimes illnesses like lupus can cause damage to the nerve endings in fingers and toes causing numbness or it could be poor circulation again caused by cfs/lupus.

I get this in cool weather, I think it's Raynaud's. In fact I have it right now.

I get numbness and tingling and it is a common symptom of Fibromyalgia. Since I have both CFS and FM I'm not always sure which is the culprit. A complaint will get you an EMG test that is usually clear and this is how they figured out that drugs like Neurontin help some people.

A small study was done recently that suggested it may be small fiber neuropathy.

http://chronicfatigue.about.com/b/2010/10/11/small-fiber-neuropathy-in-fibromyalgia-chronic-fatigue-syndrome.htm

Thank you so much for posting this Skinnybinny! This article was very interesting and I learned a great deal from all of the comments which were posted. So many of them posting the same symptoms that I experience! The tests seem rather frightening....especially the EMG and nerve conduction. The skin biopsy seems unpleasant as well. I wonder if anyone here has had these tests and if they are really helpful? Anyway, thank you for posting.

My fingers get numb from carpell tunnel. sp? There are wrist braces for this at the drug store. I use them when needed. There is also surgery, but I'd avoid it at all costs. Wishing you lively fingers.

My hands and feet are usually abnormally cold. I also get pins and needles when it doesn't seem like I should. Like when I haven't been leaning on that part of my body.

The worst is I wonder if part of why I get dizzy, get headaches, have brain fog, feel "loopy", is maybe I'm not getting enough blood to my brain. Especially since these symptoms may start or increase just from standing up. Also laying down makes it not as bad.

My boyfriend pointed out that if you sit for too long, or are in one spot too long (like if bed bound) than your body had to work harder to get the blood from your feet to your heart. It can help to walk around.

I usually can't just go for a walk. But if I'm feeling especially bad I try to remember to get up and do something. Even if it's just a trip to the bathroom or go lay down.

I try to do something when I can, but sometimes it isn't much. I really do fold one article of clothing, put it away and then go back to the computer. Sometimes just that much is a lot. Braking it up means I can do more throughout the day and crash less.