Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
The sleep issue I am afraid is common. I will get stuck always being up at 3 AM. It seems to come in cycles. I joke and say "well tonight I'm up doing night shift." Many years ago it would frustrate me, but now I just know it is the nature of the disease. I don't know if you have ever tried Melatonin at bedtime. It does sometimes help me.
I doubt that the small amount of Vicodin you are taking is causing the fatigue. It is more likely the disease. Have you been checked for CFS?
I like the about.com page about chronic fatigue syndrome. There you can find diagnosis criteria for Canada and U.S. They are mostly the same but a little different. It talks about how it begins, and gives a list of symptoms you have a certain number of for at least 6 months.
I would start there. If it looks like you might have it then discuss at the next dr appointment. Most likely you won't be doing anything very different than you are now. Cfs doesn't have a cure, or anything you can take that makes the symptoms go away.
To make it more complicated what helps one cfs patient's symptoms doesn't always help another. Pacing yourself seems to be the only thing that is universal.
I guess I'm saying that if you have it, there is no need to do extra worrying about it. You are more than welcome here. We try to support each other.
Yes, I would say that meds can add to your fatigue. Especially tranquilizers and pain meds, which are meant to "bring us down a notch"....that would have to include a drowsy side effect.
Fibro is a mean animal in itself. I hope you do not have CFS. I have it but do not suffer fibro pain. PTL for that!
However, the exhausting fatigue is surely made worse by the meds I take for anxiety. I try to use this for my good! I try to take the meds around my bedtime to aid me in my continual sleep disturbances from this illness. I'm up and down all hours of the night! I'm typing this at five thirty in the morning! So I get ya, with the sleep problems.
As was mentioned already, even if you do have CFS.....you can only treat your symptoms as they come along....devastating fatigue being number one on the list. So don't worry about getting it written in stone from a doctor. Just try to pace yourself, take your fibro meds, even if they make you tired. Adding pain to the mix isn't going to help anything, and contine to come here and talk to us for support. We're all in this together.
PS. I use a Compounding Pharmacist as well. It's the best way to avoid unnecessary chemicals in our meds!!
I used to exercise for up to an hour a day 3 years ago and now I am down to 15 minutes a day plus a 10 minute walk with my dog (which I push myself to do). I know I might be pushing my body more than I should, but I am scared if I cut down anymore, I will not be able to exercise at all.
At 41 , I am trying to hold onto any normalcy I can, even going beyond my limits to show my husband and kids that mommy is still Superwoman. My hubby is understanding, but he does not know how much I REALLY struggle.
I have given up on going to a doctor (it has been well over a year since I have been seen), because of how I am treated. I liked my Rheumy Dr., but after the Fibro diagnosis, she sent me back to my Internal Med Dr. There is only so much I guess they will do. Does anyone think I should see her for the CFS? My Internal Dr. is not sympathetic and I try to avoid her at all cost.