Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
"Incline Village, Lake Tahoe, Nevada, USA
"A chronic illness characterized by fatigue, neurlogic and immunologic disorders and active human herpesvirus type 6 infection." "This community epidemic, apparently started in a girls' basketball team, then involved primarily teacher in at lest three high schools, and then large numbers of the community."
Thats why Annette Whitmore has rallied non stop since 1985 for a special research Institute.
She got her funding.
http://www.wpinstitute.org/index.html
"The Whittemore Peterson Institute for Neuro Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability.
They are Globally recognized in finding the XMRV virus link thats in 61% of CFIDS/ Neuro Immune Disease Sufferers.
Professor De Meirleir is closely associated with the WPI.He sais XMRV is signifigant in CFIDS/ Neuro Immune Disease Sufferers but probably not primerally caisal.
Video1 ; http://www.youtube.com/user/diagnosesupportcom#p/u/12/cu08EOwFVns
Video 2 ;
http://www.youtube.com/user/diagnosesupportcom#p/u/13/7u78b-ahi74
I had hit an unmarked obstacle buried under the snow.
I was skiing on the Nevada side and when coming out of the trees on a heavy powder day I hit a buried drainage pipe and it layed me out like I had hit a parked car.
Split my face open and hyper extended my back real bad and whip lashed my neck.
When I finally got seen in the ER was too late to get stitches in my face.
Thank God a volunteer ski patrolman was not that far behind me, he stopped to help and butter flied the facial wound for me.
His name was mr Coffee. LOL.
I'm being facetious, in case anyone is wondering.
I can't believe how CFS has been handled by the CDC and other medical establishments. Can't they see this stuff?
What was it that Komaroff said about multiple viruses being involved?
I didn't have a sudden onset, mine was gradual. I remember catching 2-3 colds though, after 'the big incident in our house', and after each one, I just got worse and worse. The last one being 'the last one' so to speak. That was in the early '90's.
A cousin of my husband's was reading about CFS back then, and she'd heard there was a viral component and that the immune system either can't or doesn't know it's supposed to shut off. It just keeps fighting and fighting......
I dunno - I'm just blithering.
http://instantrimshot.com/