Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
I find anything that triggers strong emotions can set me back...dealing with people in tense situations where I'm ill at ease, driving in heavy traffic around aggressive drivers, over-exertion, anxiety over a medical symptom that pops up...even just having a great time doing something exciting like conversation with people I like.
So I live a very quiet life now, and have fewer negative symptoms...a high price to pay, but being really sick is no fun either.
No one can avoid stress. No one! It's called life. We used to be good at "letting things slide" in our healthy life, but now as chronically ill people, our worlds have become very small, and stress is hard to avoid.
I just took care of my cancer stricken husband for five months in our home. I was with him every day, all the time. I had to become a chronically ill caregiver. I did it! PTL! However, I am now in a five week crash that is the worst one I've had in years. All those months of stress and loss is now taking it's toll on me. I'm getting better. We always do.
I would just say to try to keep your stress to a minimum. There are some things we CAN control. Who we surround ourselves with. There are a lot of negative people that affect us in a bad way. Avoid them. Do things that relax you. Watch things that make you laugh. Rest/sleep often. Get outside in the sun! And just know, that if your stress is coming from a situation you are now dealing with, this situation will eventually end, and you will feel better. We always pick back up with CFS. We go down hard, a lot, but we always pick back up!
And come here for support!
Ok, I really got yappy today, didn't I ??? Jeepers!
A hypothesis:
Stress=cortisol and cortisol is so damaging to a sensitive system.
We get stressed and the adrenaline kicks in to handle the cortisol (or is it the other way around I forget) and our adrenal glands, which are already a mess, are even more stressed. The energy our bodies need to help our adrenals is stolen from the rest of our system and wham, crash!
I too was a caregiver when my final crash that led to my permanent disability ruling happened. For 3 1/2 yrs I was caring for my elderly, wheelchair bound mother in law who had schizophrenia and often screamed at the top of her lungs at all hours at people who were not there. I loved her very much but it was so hard. I was her primary caregiver and her only one the last 4 months of her life. I tried to heal after she passed but it was obvious I would never get back up again after that long a fall. I think that kind of stress might make a well person sick, and it certainly can make a sick person sicker. Such it is being a member of the sandwich generation.... at the same time I was caring for my grandsons (4 and 1) while my daughter finished school, whenever I was not with Mom...
I don't regret it at all. I think I would have gotten here eventually anyway so at least I got to help first .....
Get back to basics, exercise, stretching, healthy eating, drinking lots of water, regulating your routine and bed time to help reduce stress and ensure rest and plenty of sleep. Not taking on to many projects or activities (work or fun) at once so you are not over whelming yourself. These are proven things that help. You just have to find what helps you. For me its making sure I stretch every day and go for at least a twenty minute walk. For a friend of mine its yoga and meditation. I prefer walking my dog sometimes its a quick pase other times its slow. So, I can enjoy looking at the flowers, mountains, clouds (or spider webs one day, the beauty of the web in the sun light after the rain caught my eye). What ever brings you joy while you exercise, you got to keep moving. My stress reducers are laughing, smiling taking in life's simple pleasures (beautiful ski, flowers, sunset etc.) walking my dog, praying, going to church, reading and taking time to stretch through out the day. Some times just a few second others five or ten minutes. Stretching really helps my body aches and perks up my energy level.
Right now you don't feel well so stick with the basic. Take care of you, do what you can and try not to worry about what you can't do. Be thankful for what you can do and try do a little more when you do feel better. Don't be so hard on yourself, you're important and matter. Please take the time for you, listen to your body, eat healthy, exercise, rest and enjoy life's simple pleasures so the CFS doesn't over whelm you. It will get better and you will have bad days. Take those days to rest and reflect and figure out what you can do differently so you have less bad days. One day and one project at a time is what my mother always told me. I find those words to be so true and helpful.
Take Care, God bless you, and if you are not feeling better Go see your doctor! Don't over whelm yourself with worry, ask your doctor what they think and recommend. I just started mind body cognitive therapy and it is really helping. The foggy brain forgetfulness from the pain and unrestful sleep was getting over whelming but I'm getting back on track, you will too. (:
said life has lots of strong emotions. How are we supposed to
avoid these? I so agree.
I'm sorry you've had this relapse. There's a lot of good
advice here. I too was a care giver several times for family
who had cancers, and other illnesses. This was at a time when
I too was becoming more fatigued on a regular basis. Like
Nina, I'm glad I had the ability to do it at that time, but I
was relapsing and getting worse on a regular basis.
When I had to stop working, I did improve. I have been
able to focus on my health. So, yes stress can cause a
relapse.
Hopefully, you'll be able to find a balance. I think we
all find our balance here the best we can. Sometimes just
by trial and error and picking up on signals that we might
be getting into situations that are too intense for our nerves.