I'm, so sorry to hear that you have muscular Dystrophy! I certainly hope you do not have CFS as well.

There is no way for us to solve
the lack of sleep/ exhaustion problem because that is a hallmark symptom of our illness. Our struggle is to learn how to live life with this horrible exhaustion.

We try to pace our activities, rest as often as we can, maintain good sleep habits and choose healthy foods!

Some of us are able to take medications to help get some sleep. Most of us don't do well putting chemicals in our bodies and just have to deal with the fatigue.

Hopefully you will be able to rest, eat right, meditate/relax yourself and find some ways to get some better sleep! We all know how important sleep is. I wish you the best.

I do have CFS aswell so its a bit more harder for me! But i try my very best to try and get through the day but on days that it doesn't work, i just drop everything and crawl into bed

Oh, dear. You really are suffering. Some of the people on this site take meds to go to sleep, but meds have their own issues. My doctor can't give me anything to sleep because I have sleep apnea and sedatives will make it worse. So, I don't sleep well at all either. It is terrible. You feel like you are literally dragging your poor body through the day. I'm so sorry to hear it you are feeling so awful. I'm glad you are here with us in this group. We try to help each other here. Blessings.

Sounds like you are going through a really tough time. I don't know what can help the MD but for me, when the CFS stops me sleeping, I use a herbal tincture called Valerian. It is a natural sedative that you take in a weak dose for the nervous system and it really helps me regulate my sleep pattern. It is not a long term medicine but good for a few days/weeks. Also not looking at my PC screen or phone at night as the light really wakes me up. The only things i can find t help me are to pace my activity (this is a constant learning curve and never ever stops so is not a quick fix but works). I eat 4 light meals a day and try to meditate, even just breathe a count to ten several times, when I am really shaky (often throughout the day). I think Darla hits the nail on the head, but nothing I have found will 'fix' it or is short term - which I know, when you feel at rock bottom, is not what you want to hear, but you can and will get out the slump. Listen to your body and you'll find some small things that help you. Good luck! Keep sharing :)

Thank you everyone for your sweet kind replies, im glad i am in this group because this is really helping me. THANK YOU so much!

I hate it sometimes because minute im up doing what i need to do and the next minute im falling asleep standing up!

Welcome. I'm sorry to hear of your plight. I think the key here is when you ask how to get enough sleep to
"cover for the day". It will help if you accept there may be no such thing any longer if indeed you are speaking of sleeping solidly at night and then just going about your day. Naps must become part of your life. You might get away with one mid-day or need two, one late morning and one late afternoon - but getting in a 45 min nap is not a luxury, it's a necessity going forward. Eating less at a meal and more of them seems to help, lots of protein, watching out for food intolerances like gluten or nightshades or chemicals like msg can make a big difference. Pace, pace, pace. Be really cognizant of when you begin to tire and stop what you are doing and recharge. Sometimes this means having to sit still and rest in a grocery store parking lot for 15 min before driving... or missing out on things that will use more energy than you have. If you have sleep apnea, wear your cpap. If you drink caffeine, maybe cut back anytime after 2 pm. Our systems run slowly, and even in the case of stimulants, we take longer to get them out of our systems. I'm in rough shape here this week so just one more... there is no known cure for this illness so all you can do for now is accept, adjust and move forward. Again, welcome.