Hello. You are certainly welcome here. I think this group would be perfect for you because you could read what people on this site are going through and it would help you as you walk this journey with your husband. Friend some people on the site and read their journals. Discouragement and depression is very common with ME/CFS. I would think it would be particularly hard for a man. They are expected to be so independent. It is very hard for them to not have control over their own body. Come here as often as you want to. Sometimes people post new information about medical studies as well. Many blessings to you.

Hi. Thank you for your kind words. I know it's common, and he tries so hard to be positive, but it breaks my heart when he realizes that there's only so much he can do. The kids and I love him and he knows that, but love only goes so far. Anyway, thank you and I will try to see if I can friend someone.

Man here, and I concur that it is overwhelming to be so incapacitated / in need / disabled... This Chronic illness life results in daily deciding to continue, but it seems you are doing exactly what is needed. Showing your husband that he is loved despite the condition. Allow me to extoll you for that, I anguish over those I think who do not have a support group (especially at home) and don't have resources to combat this issue as many homeless lack for example. thank you for giving him what he needs.

With that, I am new and have more questions than answers. I have found remarkable success lately combating a poorly diagnosed fungal infection (systemic and gastro). Currently I am taking two medications that have accelerated my progress much much faster than I have become accustomed to in the last two years. I tell you because my doctors did not find it, I did through ordering my own tests. Most fungal tests are poorly done too and often result in false negatives.

If this is something you want to investigate, let me know and I can guide you how to get started. Again, this worked for me, and so far only short term and I cannot conclude what the final result will be from taking a broad spectrum of anti-fungals, I just hope that I find others who have the same issue as I do and save them from the hell I experienced last two years.

** I also did a short term antibiotic (tetra version, not penicillin version due to MRSA infection in my past), I am also taking massive probiotics including fermented carrots, sauerkraut, water kefir, and broad spectrum refrigerated probiotics.**

happy to offer continued info on my own progress if you like, and would love some in return. Would appreciate in return what insight you have on staying healthy and somewhat productive. Hope we can fight this together.

Dave G. California.

Thanks, Dave. Over the last few days I've thought a lot about human dignity and concluded that maybe he feels like I do too much for him, take away too much of his independence, his dignity. I've stepped away a bit, although he's been sick the last few days with a cold one of the kids brought home. I've been sweet and asked him if he needed help, and if he said no I didn't insist which is what I would normally have done.

About your fungal infection, I'm so glad that you may be on to a good track. The first couple of years were the worst for us in every way. He was very dizzy and feeling just horribly almost continuously. Little by little during the latter part of the second year, he began incorporating some minor exercise, and it has seemed to help. He does a light yoga class on youtube and some weights. Now he often will also go on short walks a couple of times per day on the days when we don't have something that he wants to attend with us. I do believe that he's been tested for different fungi, but I'm not sure and will look into this. He suffers from stomach issues that we have been told are related to the CFS - he has had gastritis which he hasn't had again and now he only has some gas pains and a bit of reflux which he says are not too horrible. The exercise has helped with both of those.

Anyway, thanks again and I hope things continue turning up for you.