Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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nickyj18022002 01/13/2008

I was fairly well over Christmas compared to usual but have started a real downward spell since then. In terrible pain, exhausted in every cell of my body but too wired to sleep. Headache, earache, sore throat, sore eyes, nausea and brain barely functioning. I make a real effort to stay positive and mostly try and post stuff on here to be helpful but havent got anyone here to talk to at the moment and really just wanted to say how I feel. I hate this illness. Thx 4 reading.

deleted_user 01/13/2008

I think the holidays really knocked a bunch of us for a loop, I really, really do. I totally understand the pain/wired things. It IS hard to stay positive when one feels so horrid. PLEASE keep checking back in. We're here and we'll ALWAYS be glad to talk to you!

You are NOT alone.

deleted_user 01/13/2008

I went down too and my cortisol is down to 5.5 in the am. It should be in the 20s in the am. Anyway I called my biotoxin doctor and she said I may have been exposed to mold again. She said each time you are exposed you'll go down for a few weeks. I hate this disease too.

Roses25 01/13/2008

Yep that seems to be the consensus...the holidays, did alot of us in. I, too, understand the exhausted, pain/wired thing. Feels weird doesn't it? Hang in there, we all have trouble staying positive when we feel so terrible. I read an article about chronic pain this morning that said suffering everyday is emotional overwhelming. YES, WE KNOW. Take Care.

deleted_user 01/13/2008

I agree. I think the go go get them of the holidays probably knocked us down. Now it is back to the old grind. Im sorry you are feeling bad, I hope you feel better soon. I know how you feel. PLease keep checking back in!

DarlaC 01/13/2008

Hi Nicky, you are not alone, as you can see. This was my first holiday season since my onset of CFIDS. I was in pretty bad shape before Christmas and afterwards, it just got worse.
I know how badly it hurts when the brain and the body shut down on you. You feel helpless. Nothing could be worse.
Just know that you are not alone. Get on here everyday and gripe about anything and you will feel better.
We are a loving, supportive group of people who just keep fighting and fighting to keep it together and we back each other up every step of the way.
Hang in there. Stay in touch. We're here for you.
You are in my thoughts and prayers.
Sincerely, Darla

deleted_user 01/14/2008

yes holidays are stressful and do a number on us.Sorry you are feeling so bad. hugs marilyn

deleted_user 01/14/2008

I am in the same situation. I have been ill ever since xmas. Not with a sore throat, but fatigue, sleep disturbance and depression. I think the holidays are just way too stressful. Hang in there, this too shall pass. I am with you...I hate this illness!!!

nickyj18022002 01/14/2008

Thanks for everyones support. Posting how I felt and getting your responses has really helped. I am still feeling bad and a visit to the hospital didnt help. But on the positive side I did get some sleep last night. Hope all of you that are also suffering after the holidays are managing to cope. :-)

deleted_user 01/15/2008

I'm so sorry you are feeling so bad. I'm still sick myself with a flu that's lasted 4 weeks now. Rest as much as you can & drink a lot of water & juices to flush you out. My prayers are with you.

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