Thanks RichieD , I really enjoyed that .I feel that Mark VanNess really understands our illness.Very tuned in guy with great advice and wonderful that he has measurable data as proof of our physical limitations with exercise.I continually suffer with PEM from such minimal output and it is comforting to know that people like VanNess are validating this and trying to help us improve our quality of life.Cheers RichieD.

Thanks RitchieD!
I have only watched half so far but I like the use of Post Exertional Amplification of Symptoms VS Post Exertional Malaise.
Will finish it later but look forward to having my hubby watch it with me.

Glad you folks liked the video. I intend to study it like a textbook. I soldiered through the whole thing, but it was a strain to do that. I found Prof. Van Ness's A/V skills could use some help...he kept straying from his mike...really made it tough to follow at times.

I just love Youtube, what a great resource it is. And I'm so thankful for people like Prof. Van Ness who give us hope and support.

I watched parts of this video and I don't have to explain why I could watch it all at one time. My overwhelming reaction was, "How do I get this information to all of my health care providers, physicians, nurse practitioner, physical therapist, etc.?"

ME/CFS brain
COULDN'T watch all of it at one time, not could

How to educate our health providers...don't have a good answer for that one. If you can wheedle an email address from them, you can just copy the link and send it to them.

But that's a tall order, nobody here would give out an email address to me when I asked for one. All they really have to do is search Youtube for Prof. Mark Van Ness, but that's a stretch too.

I found the video by searching ME/CFS on Youtube. There's a lot of good info out there...easily found with Google and Youtube searches.

My local doctors told me that all the information on the internet is false and misleading...LOL...really they did! Just believe what we tell ya' kid and you can't go wrong...LOL.

But maybe the rest of the country has better doctors, I don't know.

Here's summary of Prof. Van Ness's talk...

After the film, Prof Mark VanNess spoke about the work he and his team are doing at the fatigue laboratory in the Health, Exercise, and
Sport Sciences Department, University of the Pacific, California.
Working with people who have mild to moderate M.E., they are finding objective, rather than self-reported or subjective, evidence for the kind of fatigue that is specific to M.E.
Using cardiopulmonary exercise testing, Prof VanNess has proven that people with M.E.:
experience significant post-exertional malaise, though he prefers to call it post-exertional amplification of symptoms
have significantly impaired ability to generate energy from aerobic activity.
The key is that subjects are tested over two days. People with M.E. and healthy controls, all volunteers, spend 10 minutes on the
treadmill on the first day, and then again 24 hours later. Results show that on the second day the metabolic function of people with M.E.
has dropped by around 25%, such a marked decrease that, Prof VanNess told us, exercise physiologists protested that the machine
must not be calibrated properly.
As a result of the data he has gathered, Prof VanNess has concluded that therapeutic interventions for people with M.E. should avoid
aerobic exercise. Instead, they should be offered analeptic activity, intended to retrain the short-term (anaerobic) energy system to
increase range of motion and improve functional strength. Crucially, he said, the ratio of activity to rest should be one to three, and
physical therapists should be trained and experienced in this type of physical therapy.

I pasted this from the Online ME Center of the Action for ME organization. The film they're referring to is "Voices From the Shadows".

I'll reiterate...this is not about curing ME/CFS, it's about giving us significant improvement in our quality of life. I personally decided years ago not to sit around waiting for the medical/research community to come up with a cure...I believe in making the best of the situation as it exists.

THANK YOU RICHIED !!

This is AWESOME! I especially love the summaary you wrote! It is so helpful. Thank you!

Don't thank me, thank Action for ME...they wrote it...I just ripped it off their web page...LOL.

Excellent video. I like that they gave a few examples of exercises. Like literally starting with one set of 4 repetitions of wall push-ups and toe raises. They put a lot of emphasis on the importance of rest too. Even if you have to stop and rest for awhile going halfway up the stairs.

I found that in my own experience...rest breaks can be very helpful. When I'm doing gardening work, I stop frequently to sit in my recliner and hydrate. It gives me a second wind so I don't have to quit after only an hour or so.

I sometimes take three 20 min. rest breaks in one morning of work. It helps keep me hydrated too. I never do a whole day of anything...after lunch I rest. I used to keep going for whole days, like three in a row...then I'd have a huge crash that lasted for several days...or longer.

No matter how much we try to deny our illness, it always makes us pay if we ignore it. In a tough situation...like moving or repairing a plumbing disaster...I can keep going with will power. But I make a lot of mistakes and I pay a very big price later on for pushing myself.

Thank you for sharing. This explains so much of what is going on with my body.