Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

Also using sleep hygiene, and although I wake a lot am getting 9-10 hours a night.
Finding things to distract myself from the boredom of being housebound, voice dictation, reading, meditating. Being as hopeful and positive as possible.
For me, most of this is survival strategies. I have cut out on
gluten and grains. I do occasionally eat rice and I eat a lot of
quinoa. Next. I enjoy veggie, fruits, and then some times chicken.
I have taken out yogurt, cheese and eggs. I am doing a sort of
elimination diet of sorts and so far it is working very well. I can
tell because my digestion is calm most of the time. I was
working with a nutritionist for three months, but the supplements were too much for my system. I am taking what I
learned from that, and working with it. In addition to the CFS,
I also have Lyme, which is a big bug a boo unto itself. It
mainly effected my digestion so that's why I have to pay
close attention to that part
Otherwise, I do a lot of art projects and take a
class. It is my passion and keeps me focused on something
which I enjoy. Granted, I have days when I am not able to
always go to the class and things pile up, but overall, I am
happy to say I can get out and bring some good moments
home. I also have a small dog with a good quirky
personality who is my dearest friend.
Yes Having strategies and determination is
most important. If I hadn't 'slogged through' many of
the obstacles I faced, I know I wouldn't be doing as well
as I am today. Granted, a ways to go, but I feel you
all get the sense of what I'm attempting to say.
Other coping strategies for me are simply necessary. ANY coping strategy, to keep my anxiety level down. I have actually eliminated some very "stressful, dramatic" people from my life. It had to be done. I can't handle people's pity parties when they go on and on and on.......I will listen to my friends, but some people just like to dump! I have picked them out and eliminated them. In a kind way. It had to be done.
I also keep a very strict schedule. This means, bedtime, same time...every night. Meal time? Same time, as much as possible. Not to be TMI, but this keeps my bowels on a schedule as well, and that is good for me.
Finally, I lost my husband to cancer this year, and that, being a HUGE stressor led me to a Grief Share program to help myself. We, with chronic illness, need help just to get through the day, energy wise. When we suffer emotional loss, the physical burden seems worse.
I guess I an finally learning to reach out for help when needed. To not blame myself for being sick with this stupid illness, and to treat my body kindly!! We all need to learn this lesson. People with chronic illnesses tend to be very hard on themselves, and I, for one, am going to stop that nonsense! This is not my fault. Period!
Good post, Richie! xo
do a lot of walking whenever i can. HAPPY NEW YEAR EVERYONE! and of course stay far far away from stresssssss
I get a rash now if I get too much sun, and my legs don't work too well anymore, so I do a lot of gardening and grounds maintenance. Being outside for a few hours each day can dramatically change my mood for the better. If it's cold where you are...layers, layers, layers...LOL. You get used to the cold after a while...then it feels too hot indoors.
I don't eat much these days, but keep it mostly protein and vegetables.
Admitting that there are some things I cannot do.