Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
I did let my faculty know about my condition and I found that my professors were very open to working with me regarding deadlines for assignments when I had been off for periods of time. I was lucky that the understood it was not my fault that I was off a lot - unlike people just skipping class or being lazy and not doing their work.
Biggest help for me was that the accommodation service allowed me to stay in catered halls of residence for all 4 years. This is very unusual in the UK as most people only get a place in dorms in the first (and sometimes last) year. This meant I never had to cook for myself or carry heavy shopping bags.
Also, you may find it helpful to speak to a student counsellor if you are feeling low, stressed, anxious. Sometimes just having a listening ear can be beneficial, even if they cannot actually do anything to change your circumstances.
Make sure your tutors know what's going on, they should be able to help out with extensions etc.
You should be able to get DSA- disabled student allowance, which can pay for things like an ergonomic desk chair, or a mini-laptop that you can use in bed easily. Speech software to save you typing. Anything that would make student life easier for you. Have a look at this link http://www.direct.gov.uk/en/DisabledPeople/EducationAndTraining/HigherEducation/DG_10034898
You can have extra time in exams, use a laptop in exams, i'm not sure what other things you can have at uni, but i took all my GCSE's at home, with unlimited rest breaks.
I have email addresses for my tutor, i can send work in/have her send me work if i can't get in. Also they'll send someone to meet me from my taxi to push me in my wheelchair if i need it that day.
There is help out there, it's a case of knowing where to find it!
Otherwise, I say live at home and pace yourself! Who care if it takes you 10 years to get the degree it takes others 4 years? I think those of us who work harder longer end up better in the end even though the journey is much worse. By overcoming obstacles and being determined, you'll find strength.
Find friends who can help you and maybe classmates in your courses so if you miss something they can help. If your professors are nice, sometimes it helps to just let them know as well. Afterall, they're human beings too and even the meanest profs have a little compassion ;-) I've noticed, too, that just saying hi on the first day of class goes a long way with a professor. It sets the semester off right and they see that you're a student who is taking this seriously.
Well good luck and let us know what you find to help. I'm always up for new tips too :) Email me anytime or visit my blog - the journey's always easier together!!
xoxo