Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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/ Chronic Fatigue Syndrome Support Group

CFS Site

Artos
Artos
Hey everyone,

I am trying to locate a particular CFS site. Obviously, I can't remember the name. It was a pretty official-looking site, similar to http://www.cfids.org but that is NOT the one I'm looking for. The one I'm looking for had a page where you could send saliva (I believe it was saliva) swabs for them to look at in hopes of learning more about CFS. Does anyone know what I'm talking about? It's driving me crazy! :)

Thanks!


Sarah
Artos
Artos
And to add another comment, if no one has any idea what site it is I'm thinking of, what are your thoughts on who the best groups/people/organizations who are actively researching CFS and looking for a cure?

I'm asking about this because I have a fund-raising idea, and I want to make sure whatever funds I'm able to raise go to the BEST possible place.

Thank you!
hollie9
hollie9
The ones I know about are http://phoenixrising.me/ , their forums are good too.

http://www.co-cure.org/

http://www.prohealth.com/me-cfs/index.cfm good forum here too.

hollie
deleted_user
deleted_user
I've watched the CFDS Assocation of America do an outstanding job of leadership, lobbying, and funding grants for the past 22+ years. Their people have an in with the government [which they've worked hard for] and command a lot of respect. They've been at the forefront of this long battle. They reply to the press on our behalf when news comes out about CFS.

Another worthy group is IACFS/ME which sponsors the international conferences, puts out a quarterly researchers' bulletin, & I don't know how much research they directly sponsor to be honest. But do look into them as well.

Best of luck with your find raising!