Gosh I wish I had a simple answer for you.
I'm in New England, land of Ivy School medicine and I can't find a CFS clinic within 150 miles. I think most are on the West Coast.
I found a PCP who gets is as much as any, she is a D.O. I find they are more apt than an MD to think of this as a "real" illness and try to treat our whole bodies. From there you might get a referral to a Naturopath. In my experience of 22 yrs they are our best bet, at least to help guide the pcp. Anything they can't prescribe they can work with the pcp on doing.
I think the reason there are so few "clinics" is because CFS is such a varied and extensive illness that sometimes you need multiple docs to cover it all. Rheumatology is really not a bad place to start. They can rule out a lot, which is necessary so you don't treat the wrong things.
Again, wish I could just point you to a simple answer, but sadly there just isn't one.

Nina, thank you so much for offering your insight! I hope more providers appear in NE. I've got a naturopath, and that's a great start towards long-term treatment. Per your advice, I'll get to a rheumatologist for that level of diagnosis. Again, thank you! I welcome any other info that anyone else has.

Alternative medicine nurse practitioners and Naturopaths seem to be the best choice for treating the symptoms. Rhuematoidologist are the ones who end of making the diagnosis. This is all based on my personal experience. Regular MD have been no help to me. They just want to send me to a psychiatrist and get me treated for depression. Sorry for being negative. This is a tricky disease to treat. What is the Mayo Clinic's attitude toward this disease?

Thanks 2DA, and no apologies necessary for being negative! I appreciate the honest warning. I have been treated for "depression" for the past two years and it's been a nightmare (that's for another post). A naturopath diagnosed the Stage 3 Adrenal Fatigue just a few weeks ago, which led me to learning about CFS, and EVERYTHING is making sense finally. But still unclear on all the options beyond the supplements, hence I'm starting my exploration, and I was encouraged by the existence of so-called "CFS Clinics". As for Mayo, they are a bit of a distance, but I may end up exploring them if there aren't any closer options. Thanks again for the insights!

It seems North Carolina is a hotbed of CFS specialists: Dr. Paul Cheney has a clinic there and Dr Paul Lapp is at The Hunter Hopkins Center in Charlotte. They are the leading national/international experts.

You might try the Mayo Clinic in Rochester, here is a link to look at the doctors they have there. I would research the doctors they list. http://www.mayoclinic.org/appointments/find-a-doctor?location=MN&letter=A

I have seen a neurologist for the past 10+ yrs. He has done well w me. I have also had good luck w a "Concierge" doctor. That is a doctor (fully trained) in private practice who is not part of the insurance community. Instead you pay them a flat fee each month for health care. I pay mine $225/mo and see her every six weeks for an hour.

Good luck in your search.
Linda

There is a list of CFS specialists and clinics at the bottom of this document, some in New York:

https://sites.google.com/site/cfstestingandtreatmentroadmap/

Cocure.org! Click on the "good doctor's" list! xox

Hollie9, that is wonderful summary of all treatments, and an excellent list of providers. Where is it from?

Linda, it came from Cort Johnson's site, PhoenixRisingCFSME, or its sister site.

Thank you all for the advice!