Over the last few months I have lost about fifteen pounds or so, which is a lot for me. Everything I have read about ME/CFS affirms that this illness causes both weight gains and weight losses in its victims. I have experienced both in the many decades of trying to live with this wretched illness.

I lost about 15 lbs. in a month (which I didn't have to lose.) I put them all back on now and really felt "better" about five pound lighter!

I've struggled to maintain my weight through the first three years of CFS, but managed to do so.

Now, I've had the complication of digestive issues, so the appetite is there, but the stomach won't cooperate! Ugh!

I think a lot of the weight gain people experience is from the meds they are put on. I'm not taking any anti-depressants or anything that would cause weight gain.

I also think our bodies are over-stressed in many ways, and that could cause weight loss as well.

It's ok to be thin, just be sure you're well nourished!!!

Before i was diagnosed i lost about 5 kilos and after diagnosis i lost another 20 kilos i was very very thin and had no or little appetite at all i didnt have the energy to lift food to my mouth.

I was a weight gainer initially but I attribute that to using a tricyclic antidepressent for pain management (all I could think about all day was cupcakes. )

Loss of appetite is a new symptom that arrived during my latest relapse. It can be a red flag for a lot of other health conditions so at first I had trouble even identifying it as CFS. I have to force myself to eat and stay nourished and have lost a lot of weight. On days where I feel better my appetite returns but not quite to normal yet. It's hard to cook right now so I'm eating things that are not very appetizing like frozen meals dehydrated soup, so that might be part of it too.

I lost about 27 pounds the las 18 months because of feeling so bad and no appetite. I have gotten a little better appetite but still cannot gain weight.

I've beeen gaining weight most recently due to my inactivity.

When I first got sick I lost almost 20 pounds. Still to this day I can't gain it back. I'm eating about 2000 calories a day and sitting all day yet still 10 pounds under weight. I don't get it because before I got sick I never sat down, barely ate and always maintained a normal weight.

Oh, how I wish I was one of those people who lost weight. I need to lose about 60 lbs. Weight gain has been my problem. I get those carb cravings when I am fatigued and/or depressed. I get depressed because I can't do the things I loved to do.

I've gained a little bit of weight, probably mainly to do with my lack of activity (and I spend too much time on the computer). Probably also to do with my eating, but my apetite goes through phases.

I have gained alot of weight over 50 lbs becuase I find myself eating quick takeout so I can go back to bed quicker and so I do not have to cook.

I've gained weight partly due to not exercising but also because of menopause. I've been dieting and have lost over ten pounds. I've used one of the acaia things. I'm also following the Special K diet.

I used to weigh 120 pounds and wore a size 4 or 6. Now I weigh 163 and wear a size 16. I got up to 175 and felt like a beached whale.

My weight has gone up, but I think it is because I eat anything I want. I dieted for so many years, and got tired of it. Part of the weight gain is due to age and not exercising. Ideally I should weigh 120lbs. I use to weigh 105lbs. I now am at 130lbs. I probably should lose 10 lbs.

I gained weight progressively for the last 20 years. I tried in vain to find a doctor in all those years that saw my weight gain as a symptom and not some failure on my part. I am now very overweight but I am losing lately even hardly being able to move. I was starving all the time before but since cutting out all preservatives and packaged foods, I am not starving anymore. It was quite remarkable to experience - I didn't even realize that healthy people don't starve themselves to stay that way. Now I eat anytime I am hungry and anything I want, but it has to be made from scratch with whole foods.

When I think back to how hard it was to take the plunge and make myself do all that shopping, washing, chopping and cooking....I could not have done it without my kids. I was so sick with so many other symptoms that I didn't really have a choice, though. (Shortness of breath, swelling, bloating, chronic diarrhea, joint pain, muscle aches, light and sound sensitivity, migraines) I was dying and desperate to find some answers.

All of this helped me figure out why I am so overweight and helped me lose some, but mainly, it weeded out all my other symptoms besides the chronic fatigue. When I beat this fatigue (and I think this diet is working), I am going to start a cooking service for CFS patients.

I gained 50 lbs while on Lyrica and a few more since stopping. I can't seem to loose any and my triglicerides are high. That would indicate not enough burning of fat - duh... I've been pretty sedentary since things went bad with Lyrica. I wonder if Lyrica did some kind of permanent damage. I've never had such trouble with weight in my life until I took Lyrica. I've always been tall and well proportioned - now I'm just huge..