Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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iceman33 02/13/2011

CFIDS progression symptoms getting worse

Hi everyone

Ive been living with CFIDS now for almost 5 years and the symptoms are getting worse, lymphnode pain all over body now, severe fatigue, migraines,
nausea, neuropathy, and cognitive problems.
Just wondering how many others find this or has happened to them and if anything seems to help.

thanks
Harry

deleted_user 02/13/2011

sorry i am there too.mary in pa.

RichieD 02/14/2011

I've had times when things got progressively worse. But after a while my symptoms stabilized and eventually got somewhat better.

I think we all go through bad spots and good spots to some extent. Is it possible you are under some kind of emotional stress? That makes me go downhill every time.

Be patient, things can turn around. Don't give in to hopelessness. It may take long time, but things can get better. Try to get adequate rest and eat nourishing food, too. Most of us find that helps.

deleted_user 02/19/2011

iceman33 what meds do you take? If you can't relieve the fatigue, maybe it would help a little bit to get new medicine for the pain. When things get worse for me I usually need to make a change in medicine. I take Savella (I also have Fibromyalgia), Tramadol and Flexerall for the pain, twitching and muscle stiffness. I believe there are some people who take beta-blockers for the fatigue caused by POTS (Postural orthostatic tachycardia syndrome) and it has worked very well. I think it is almost impossible to find a doctor to prescribe them, however, since many doctors think CFS does not even exist Maybe there is someone on this forum who knows a doctor in your area who is willing to prescribe beta blockers? Here are some posts on POTS--http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Beta-Blockers-and-Florinef--vs-other-meds-for-POTS/show/783809

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