Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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jcpmoore 04/30/2015

they are living at the doc's office? I have never been so busy with doctor's appts in my life. I am seeing my PCP for migraines, the neuro for CFS/Fibro, another about weightloss, another about sleep. I have 2-4 appts per week. Feels like I'm living there. :o Anybody else spend this much time with docs?

I'm sure it'll all settle down after a few of these things get settled and all, but it's just so different for me.

spacepony 04/30/2015

Whew, jc, that's a part time job. Do you feel like you have a good team working with you?

I'm on hiatus :-)

Hang in there and good luck x

triunfadora 04/30/2015

I go through times when I see a lot of doctors, but then it slows down because they finally realize they can't or won't do anything to help me. Fun, fun. It sounds like you are really tied up with doctors right now. I hope they can help. Sometimes it's nice to feel like you are trying SOMETHING. Blessings.

hollie9 04/30/2015

I don't see as many docs as you but if you find out how to lose weight I'd sure be interested!

Nina1959 04/30/2015

I hear you...I go in waves as well. I'll go months with not much, but then I see one and they refer and it goes from there. I saw three this week, have three next week....when people ask I joke that I am a professional patient.

jcpmoore 04/30/2015

Good to see I'm not the only one. I should be able to stop seeing my PCP for a month or so now that she's given me something for the migraines. The neuro should be heading up my team moving forward, as far as handling the cfs. I pick up my cpap tomorrow, so after that I shouldn't have a lot of sleep appts after that. Going forward it should be just weight loss and neuro.

I am hoping that after mid-May things will slow down tremendously. Thanks for sharing y'all.

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