Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
I know this to be a fact because I can predict when I'm going to get really testy and irritable based on my experience with the cycles of the way the illness affects me.
I get busy, that helps a lot. I'm careful to balance activity with rest, but inactivity just makes me stew and get into morbid states of mind. My advice is to get busy with something. I do a lot of gardening, I'm trying to grow a lot of my own food.
Try giving your living quarters some cleaning, it will make you feel better if you can take the exercise.
How do I deal with it? It's okay to have a bit of a fit now and then. Go ahead and scream if you need to. The problem is that for a lot of people they can release pent up emotion with physical exercise. If you can go for a walk, great! If you can put on some musice and dance, fantastic! If you can throw a pillow at the wall and punch it and pounce on it, terrific! If not, then come to DS and scream about it because we know what your screaming is about.
It's good to vent the anger in a positive way. Talk to someone. Go in the yard and yell. Throw nurf balls at the house, whatever you need to do! Just don't stuff it.
Come here and talk about it the way you are doing. I'm sure all of us have found ways to deal with the anger part of this grieving process. Some are doing better than others.
I try to not take the anger out on anyone else. That's my number one priority.
When you feel the anger coming on, acknowledge it, to yourself. Then move on. I find humor to be the most helpful thing. Seriously, find something to laugh at!! It will lift your spirits and move you from that angry place.
Most of all, understand that we all deal with this. There's nothing wrong with feeling anger. It's a normal emotion.
And come back here and talk about it!! xoxo
Thanks a lot for the support guys, I really appreciate everyone's input.
Hugs to you.
I've only been ill for a year but it's pretty severe. I find anything that allows me to be the agent of my own destiny helps a little emotionally. An electric wheelchair, playing a game of pool, doing some research of my own. I also have a feeling that building something physical - however long that would take - would be good for my head.
Also the years you have spent being ill have not been totally lost. Granted they have been unpleasant in ways that only you and us can understand but you may have also done little things you can be proud of - even if it's just surviving - just posting on here occasionally to help other people - you've got every right to be proud of your feat of survival.
Answer yes.
Noise inollerance > anger,
Food intollerance > ^ pain > anger
Cognative impairment > frustration > anger
Physical impairment > anger
6 in IBS-d ^ > in dispair ^ > in anger
Bitterness of losing many years is only ofset when we realise that we have been growing in unususl ways in testing tollerance compassion and understanding the likes of which we neer before knew of because we were niave to such loss.
Dont wory anger is often just below the surface but I keep it in check and by grace allow patience and perseverance to preside. Anger soon plays second fiddle then 3rd fiddle.
http://webspace.ship.edu/cgboer/limbicsystem.html
Neurologically anger is easy to understand by association of proximity to the amygdala.
Neurological disorder ICD 10, G.93.3
World Health Organisation (WHO) 1969
Priority 1 Disease of Public Health Importance
Centers for Disease Control (CDC) 1997
The WHO rightly ID ME/CFS as a Neurological Disorder of Organic Origin - Virus's and Toxins.
Virus's and Toxins overoad the immune systems spinal fluid (Immune profile) and interact with the brain proteins.
http://aboutmecfs.org/forums/content.php?92-Proteins-on-the-Brain-A-Breakthrough-for-ME-CFS&page=2
The brain stem is damaged, frequently the Pineal gland is damaged, the toxic immune profile easily influances the central cortex Hypothalmus HPA axis and look at the vacinity of the amygdala.
In most ME/CFS sufferers the Parasympathetic Nervous system is non doninant and the sympathetic nervous system (fight or flight) anerobic metabolism is perminantly switched on necessitating the exhaustion we experiance. When sympathetic nervous system is dominant then its so much easier to arrouse anger.
http://www.chronicfatiguetreatments.com/forums/chronic-fatigue-syndrome-f1/topic1212.html
Idiots like Dr Wessley play on this by marketing advertising campaigns saying ME/ CFS sufferers gave him death threats. He is only seeking to provoke more angry public media friendly moments where ME/CFS'ers lash out at him. Such is the idiocity of Dr Wessley.
When I am angry about my life now versus my life 15 years ago, I yell at God. He can take it and he knows how I feel. If yelling at him makes me feel better, I think he's okay with that.
The other anger outlet I like is reading the book of Job. That guy lost a lot and he yelled at God. He is a first class complainer. I read it silently, but I comment out loud. I say things like - yeah you give it to him Job; that goes for me too God; Job you are one good whiner.
I usually end up laughing at myself but thanks to Job, my anger is back in its cubby.
i try to laugh at the stupid things that i say and do - rather than cry. my family laughs along with me (or at me :) i'm cheap entertainment)
i daily have to remind myself that this is how it is now and i can go with it or fight it and be sicker yet. i am always hopeful for a 'ure' but for now, it just gets worse. i do what i can - sometimes that's nothing - sometimes it's a little more than that. people who think we are lazy or complainers are clueless and i don't give them the satisfaction of annoying me. they don't get it and often don't want to get it. people who haven't walked in our shoes really don't fully understand, but some try very hard and come close. those are the people i keep close. i really try to count my blessings - there are so many of us with CFS/ME out there that have it even worse than i do.
so many great solutions/ideas mentioned above. i am thankful to have found such a supportive site.
When I was at my worst I would go from depressed to anger to struggling for hope and a positive attitude just to repeat it all over again. You sure got a lot of great feedback from your post. I hope you have a restful, peaceful evening.
Talking to hubby about my anger really helped. Breathing Out the anger, as suggested by my acupuncturist helped me avoid keeping it all in my gut where it always did damage. She'd say "just acknowledge the anger and then blow it out until it feels gone." smart lady!
Our illness makes us hypervigilant and sensitive to negative remarks, there are lots of people ready with sarcastic comments about our illness, emotional disturbance and anger causes our symptoms to flare...so we give up on social interaction and stay home.
I'm sure there are people who would read this and think of ways to coax us out of our caves. But in the long run it may be that we're better off staying away from people. It's never gotten me anywhere when I try to socialize with people, I know that much. It always seems to lead me to a place where my illness is a lot worse.
I'm hopeful some of the new research going on may help to legitimize our illness. Then maybe there will be fewer things to make us angry. As they used to say in my family...live in hope and die in the poorhouse. Unfortunately they don't have poorhouses any more.