Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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feeling better

abbybowles
abbybowles
I am feeling a lot better, my eyes are still so heavy and my naps are hours long when i get home from school. i want this all to go away!!!!!
ladybugdreams
ladybugdreams
I am glad you are feeling better, it is nice to have some good days. I am sorry you have to deal with this at your age. Just keep pacing yourself & if you have to have a nap after school then do it & don't beat yourself up for it. I hope you can have some fun during your school days & on the weekends. Do your parents understand what you are going through? That helps so much to have support. Sending you love & hugs, Denise
triunfadora
triunfadora
Hi, honey. I understand your eyelids being heavy. I often feel that way. When I was in high school, (I had CFS toward the end of that time), I had to rest each day when I got home from school. Acceptance doesn't come in a day. It is a long process. You'll spend some time in the "It's not fair" space before you can move on. I am so sorry that you are so young and struggling so much. Hold tight. Much love.
DarlaC
DarlaC
I'm glad to hear you say you are feeling a lot better!

Remember, with CFS the good days will come, and then the bad days may follow...where you can't keep your eyes open. This is the cycle of CFS. It's called crashing when you are too weak to function. It's something we get used to, but never appreciate very much. It is the feeling of exhaustion that defines the disease.

If you can learn to rest, every chance you get, you will be doing yourself the biggest favor, ever!! Try to do that. Using energy is what you are going to try and take control of now, so that you have some left at the end of the day!

We will help you! xo