Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
I just wanted you all on this post to know that a member here who posted on my post about LYME DISEASE OR SILENT KILLER, who apparently thought I was lying about how it is spread (can go right on line and look it up ) came over to the Lyme group today and said that I was harrassing her and that she has to leave that group. She was never an active member of the LYME group that I am aware of and I have been here for 2 going on 3 years.
I hope that none of you have to be put through the same situation. If you want to know who it is I won't tsll their name but she is young and you can go to my post and see who was as she put it PISSED OFF.
I did my post for those who may thingk their CFS could be Lyme realted as mine was. I am sorry for doing this but I think what she did was very childish and apparently thinks this is a place to play games. I for one are for the support and the information we can pass back and forth. I will let you decide for yourself. I am not going to let someone who apparently out to do no more than cause trouble get in my way of the support I give on here or the support I recieve. All I can do is pray that she can grow up and come on here like an adult and endulge in adult conversations :)
I hope that none of you have to be put through the same situation. If you want to know who it is I won't tsll their name but she is young and you can go to my post and see who was as she put it PISSED OFF.
I did my post for those who may thingk their CFS could be Lyme realted as mine was. I am sorry for doing this but I think what she did was very childish and apparently thinks this is a place to play games. I for one are for the support and the information we can pass back and forth. I will let you decide for yourself. I am not going to let someone who apparently out to do no more than cause trouble get in my way of the support I give on here or the support I recieve. All I can do is pray that she can grow up and come on here like an adult and endulge in adult conversations :)
I disagree with things people post, but I always respect their right to express their views freely. I try never to make it personal, we will never learn anything in life if we don't allow others to express views that oppose our own.
Many of us on these sites have been (or are) angry about their illness/condition -- for all kinds of reasons -- and will sometimes use this forum to act out those feelings. This doesn't make it OK, though. I'm just mentioning this because I've been attacked once or twice myself, but also because I've sometimes been the angry one. I wish I could take back some of the things I've said in anger over the years. Ah, well. Maybe she will regret her actions in time. Take it in stride, if you can.
Hugs, Jeb
Apparently it is the old adage lets kick them when their down!! I am just going to let it slide right off if not I will end up saying something I should not and I will not stoop to their level anymore. As I said on the other group if I am taking someones advise on a subject I am going to do my own research on that subjsect also. I do not take anyones word as "law"
Supposily i am spreading lies and making people scared! Well the way I see it is, if you know me then I have nothing to worry about. I have been on here for almost 3 years and this is the first time this has happened all because someone does not know how to act like an adult.
I am sorry that we even have to spend anymore time dealing with this. I am done . They can say what they may, apparently I am also a terrible person for saying that I believe in God and that he has helped me deal with my pain and sickness. Boy I thought this was a free country with freedom of speech, Am I wrong? Anyway this post is done I will not play their childish games anymore :)
Tahnk you to all those who understand, i am thankfull to have your support on this and just in general, we all need each others support.