Cerebral Palsy Support Group
Cerebral palsy or CP is the most common childhood physical disability. It is a permanent physical condition that affects movement. There is no cure for cerebral palsy, but various forms of therapy can help a person with the disorder to function more effectively. If you or a loved one has cerebral palsy, join the group to share your experience or get advice from others.
Well over the last year I have been dealing with tendonatis in my elbow. Lets just say it sucks and has to do with lifting children and the same motions with my hand, wrist and elbow. When it flares up it is painful. I got put on anti inflamatories which seem to help somewhat. No surgery as of yet! Let me know what you find out .
God Bless
I never had a bulge or pain there before this injury if that's what it is, I guess I'll find out I hope. So I'm just not used to this kind of pain, its probably the worst pain I've ever felt.
Well first I want to find out whats up with my left wrist and fix that, then I'm going to ask the doc about possible tendon cutting and lengthening surgery for my hand, elbow, foot and ankle. I've been reading about it on different websites and its all been very positive feedback. Most people with CP come out of it better then they ever were before. So if that's true that'd be awesome, of course like your CT release surgery Chip, I might have to go back again in the future, not sure if tendons ever come back once they are cut.
One week isn't bad for wrist surgery, I've heard its a pretty fast recovery, but wasn't sure. That'd be great I might even be able to go back to work for a bit longer after surgery, I'm only there where I work till the end of October, so I feel bad doing this now, but I just can't take the pain. If I have to leave my job a month or so early that's what I have to do. Not worth the pain I'm in.
l highly recommend 'BIOFREEZE'
God Bless
Just an update, I went to the orthopedic doctor today and he was much better then the family doctor. They took x-rays of my hand and foot and nothing is broken which is good. He did however make an appointment for me with a neurologist for an EMG test on the 23rd, so that's not too far away thankfully. I guess it's a test to check for nerve damage and to check what muscles are affected. I saw a video on YouTube of it and it doesn't seem too painful, which is good lol. They just hook up sensors to the affected muscles, in this case my left foot and hand.
So then after that I have to do PT for a month for 1 or 2 days a week at home I think it said, and see if my tightness and pain goes away. If I get back to where I was he said I probably won't need the surgery, but if after the PT I don't see a big improvement he can do the tendon cutting/lengthening surgery then. Which is good because by then it will be November and I'll be out of work away so it'd be a good time for surgery.
He was really cool though, at least he's giving me the choice, I'll probably still want the tendon surgery because of the improvement I could see. But we'll see what happens after October.
Just wondering, has anyone gotten an EMG test done? It says it takes 30-50 minutes, guess that's not too bad. But if anybody has had it done what's it like? And was it hard to do with the spasticity? I know when I get nervous I'm really jumpy, but I guess the test will tell them why lol. Pretty sure I must have nerve damage somewhere.
Hopefully I can get it all done in one surgery, the tendons and the assist. I know surgery is basically a last resort, but I'm all for it if I can walk better and use my left hand more, and I'm less tense and spastic.
God Bless
God Bless
He didn't recommend a splint, nor said surgery would stop spasticity. He said he wants to figure out why my hand and foot got so tense and more spastic over a year I guess is why the test was scheduled, but I could have told him it was from the assist on my wrist, my muscles are tense from the pain, it's just a natural reaction for muscles to contract and tense up when there is pain from something, in this case the lump.
But like I said the diagnosis was an assist on my wrist, and he directed me to a neurologist and said he'll probably put me on nerve medicine to decrease the spasicity, and a month of PT for 1 to 2 days a week. Then he said if I don't see a big improvement or any to come back after that month, so around November, and he can remove the assist, and I'm assuming do the tendon surgery as well which I talked about having done. If not I'll bring it up again cause I'm most likely going back in a month.
But about the tendon surgery, from what I've read it should decrease the spasticity greatly, probably not stop it altogether because the tendons are what moves the muscles, so if they're cut or lengthened the muscles won't move near as much. And if done on the foot/ankle it allows you to walk on your heel normally and not the toe, because there is no tendon lifting the muscle, in turn lifting the heel up, from what I understand. And on the hand it stops the hand from dropping down and turning out because the tendon will be cut or lengthened not sure, and the muscle won't be pulling down and outward from the tendon. So it sounds very promising from what I've read about it.
But for now I have nothing until the 23rd, after that I do PT for a month, then I'll probably go back and schedule surgery. Hope that helps.
-Tim-
God Bless
/
I'll share the webpage I sent to you Chip with everyone else. Check out this webpage, this is the tendon surgery I want to have done to my left hand and foot. This is what my hand is doing, the thumb curling and the swan neck form. Read the story and check out the before and after pictures, it's pretty amazing, his hand looks perfectly normal after the surgery.
http://www.pediatric-orthopedics.com/Treatments/CP_Hand/cp_hand.html