Hello - I'm 43 years young and have had mild CP my entire life. It's impacted my entire right side in one way or another... small limp when I walk and my right wrist has been getting progressively more spastic with age. I have had limited use of my right arm my entire life. I was also diagnosed with Rheumatoid Arthritis at 25... The arthritis has progressively made the use of my arm and spasticity worse. In the early stages of the RA, there was so much pain when moving my arms, hands and wrists I cut down on their usage... particularly my right side. As such, there has been a steady decline in my ability to use it. I can no longer carry items with much weight, and my wrist is so contracted I can no longer straighten it enough to ride bikes with my children.
Due to my severe lack of mobility and the increasing changes to its physical appearance, I'm in the midst of talking to a hand surgeon about potential surgery to help with the spasticity as it's becoming increasingly more painful. I started with an initial round of Botox injections that has been unsuccessful, and will probably go one or 2 more rounds before looking at possible surgical options.
The reason I write, is I'm hoping somewhere out there can share any success stories with me, be it by the use of Botox or a surgery that has been performed. If you are out there, please share your story. Anything positive I can take to my medical team would be incredibly helpful.
I look forward to learning from and getting to know you.
so as you may all know I have cerebral palsy and I was just in deep thought today and figured I'd ask a few of my fellow people that struggle with this everyday if they ever get tired of people asking them what's wrong with you or what happened to you I seem to get asked a lot more than normal some days it doesn't really bother me but some days I wish I was left alone
What happened that caused your father to pass away, or leave you? Tell me how it effected you in a discussion post or in a comment on this one.