i no i no i had to stop working out becouse i was geting sore and never went back to it becouse when i tryed i didnt have enough control to do the movements. trust me im in pain every day im on volume right now 5 mg. im on medicaid cream that dont even work the patches work so much beter. my insurance denied me the patches. they denied the volume bot i got it any way. im on tazadine 2 mg twicw a day. and if i have trained staff my back gos crazy i have 24 hour staffing and im 34 in a couple of weeks. i no what you mean if u need some one to talk to im here thank god i have my feoncea

Oh my goodness yeah see I have nada to whine about, I commend you on your strength your amazing

yeah i know what u mean

rodie,
Isn't the "Vitarin" helping any with cp pain?

GuitarGod--To be honest i havent been taking it I need to order some more, prob one reason why my bodies been hurting more. Ive been so busy just go go go trying to get this hope alliance off the ground also working on a workout for people with CP. Im start gettting back into wk outs this week and get more vitarin and I should be good to go. Hope your doing great bratha. Good to hear from ya.

now that im older. i dont hike as much as i used to because it takes me three days to recover. But working out is the only type of exerise that doesn't hurt. now if i only had a gym close by. I would work out everyday. like i used to in high school.

Limpin - how's it gonig w/ the wk out? Lucas has been doing his squats on the 'total gym' I bought for $30 @ a garage sale end of August. :) Also, I need to get you Lucas' "story" for 'hope alliance'.

All: If we don't do, @ least, stretches each morning, Lucas (9 yr old) does not do well @ school, in karate class, swimming in the pool (just closed it over the wkend, too cold out, now) @ the YMCA, etc. He just wants to sit around and watch TV instead of doing anything else... So, I try to keep him on his toes about stretching & using his right side as much as possible...just as he keeps on me about this, that & the other.

BTW, I posted the following a few min. ago...might be helpful for others? Take care!

History: OT/PT since age 5 months for CP hemi parasis, right side. In June, 2008, he had heel cord lengthening AND medial ham string lengthening. He's worn various braces/supports (AFO, DFO, left arm restraint), Botox injections in his arm & leg, along w/ leg 'serial casting', etc. He currently ONLY wears a night time 'continual stretch' apparatus from DynaSplint...while he sleeps, the tension continually puts pressure on his foot to stretch the heel cord; working GREAT...!

Yesterday, my son, age 9, had his 4-month update appt. w/ his physiatrist (doc of physical therapy). The doc was SO excited to share something new he found AND used @ the CP conference w/in the past week or so. Specifically, a glove that enables the hand to strengthen while being held in the proper position, encouraging the muscles to eventually be weaned off the glove. We're going to set up an appointment to have this glove made for my son to use. We will keep you updated. Here's the website to check out...more than just glove support technology, they do all types of supports.

www.dmorthotics.com

Justin, soon I have a work out that will be out you can do from home. i will post on this site when its available.

LReneeNMike-- That would be awesome to get Lucas story for the site, we have a few going up this weekend. The work out is going good been working hard on preparing one for kids and people to do from home. Im super excited to see how many people it will help. I think its great you encourage him to stretch, keep on him he doesnt know now but he will appreciate it later promise. I wish i would have started earlier in life no doubt. Did you guys ever check out our site? jrodiehope.com its being redone but there is a cp vitamin on there its been getting more and more feedback It might help with his energy and daily function it does for me. And thank you for the info IM going to look up that glove right now.

I have always stretched but I'm getting tighter with each passing year.. My hamstrings especially. My legs are only effected but I am in pain every where.. Not just a knee or hip every joint, every muscle and I'm so tired from the moment I wake up. I try to do stuff and live my life but then I pay for it for days later in misery..

I used to hurt my back or knee and wake up and be fine. Can't sleep pain wakes me up at night. Burning pain from a pinched nerve plus what feels like arthritis pain times 100 but hardly any
arthritis to speak of.

So for those of you who hurt... Is it widespread like me or is it a knee or shoulder.. arm or back or everything like me? Going to pain doc tomorrow see if they can up my balcofen that is definitely part of the problem I'm so tight muscles feel like they are being squeezed tight all day/night long... The pain varies from burning-stabbing-aching ... Therapy isn't working for me ...

Just wondering..
Have a great day ya'all

Yup I hear ya...
Just this weekend I started with sonmething new. After 3 days straight of being on my feet and on the go, BOTH legs and feet decided to swell and they look like ythey have broken out in a rash (Just the calves) It looks like broken blood vessels. They feel like stumps, especially my right leg. It hurts So sexy :P

Yup...happens to me too, especially if I haven't been sleeping well...makes it worse.