Celiac Disease Support Group

Celiac disease is an auto-immune disorder of the digestive system that occurs in genetically-predisposed individuals. It is characterised by damage or flattening to all or part of the villi lining the small intestine, which interferes with the absorption of nutrients. This damage is caused by eating anything with gluten (gliadin), a protein found in wheat, rye, and barley...

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Gastrointestinal System
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Severe Abdominal Pain

iheartcats
iheartcats
Within the past year I have gotten several episodes of the most severe abdominal pain I've ever had. They have always happened at night and are paired with chest pain as well. I can tell when it's about to happen because I will get extremely nauseous and my stomach will hurt and then it just gets worse. When it happens, I can't move and I sob and yell because of the pain and no position makes it go away. My mom told me it looks like I was going to have a baby! Also, I am constantly nauseous. I get so nauseous when I'm hungry, but when I eat, I get nauseous again like 30 minutes later from eating. It's a never ending cycle.
Anyway, each time this has happened I know I didn't eat any gluten because I ate all my meals at home. I went to the doctor last week to get my liver and gallbladder checked, but of course my doctor thought I just ate something with gluten in it when I know I didn't. I tried to tell him this but he was still not sure, but at least he tested me for other things.
Has anyone else experienced this? It's very painful but it's only happened a few times. I haven't gotten it in a month or so.
deleted_user
deleted_user
I am really sorry that your doctor behaved that way. It IS possible for Celiac's to have other things wrong with us than just gluten.

I have been 100% gluten free for 15 years now. When I lost 35 lbs due to some intestinal issue, my first doctor tried to tell me, "I know you celiacs stop wanting to stick to this diet and eat good foods."
That sort of attitude is just ignorant.

Hope you feel better.
22Lynn
22Lynn
Perhaps you've developed IBS. It can be very intermittent or constant. I was born with celiac but wasn't dx until I was 54. I've been gluten free for 2 1/2 years. I had a bad drug interaction in February of 2013, I had to take both to stay alive. I was on them for 2 months and that started my IBS which is very recent for me. So that is a possibility for you too. I would see a GI doctor just rule out anything that could be serious.

I hope you are feeling better soon. You might want to post this on the IBS site and see what answers you get there. Good luck.
nanny1611
nanny1611
Just a few thoughts on other possibilities:
(1) Appendicitis
(2) Endometriosis (would probably be cyclical)
(3) IBD (Crohn's Disease or Ulcerative Colitis)
(4) Diverticulitis (certain foods could trigger)
(5) GERD
(6) A response to something like corn or soy
(7) Lying down too quickly after eating (should stay up for 3 hours)
(8) Infection in digestive tract
iheartcats
iheartcats
Thank you all so much! I'm waiting until I get my most recent lab results and will figure out what to do from there. I really appreciate your replies :)
deleted_user
deleted_user
with my celiac I get very nauseous and such bad abdnominal pain,it actually pulls in my side, but starting to figure it out little by little that too much dairy products also sets it off and makes me ill
deleted_user
deleted_user
Try starting a food diary. Write down every single thing you put in your mouth, including toothpaste and mouthwashes. Also record hair sprays, hair shampoo, soaps, EVERYTHING!

Also write how reactions even the most minor ones.

Later you can look it over and find some pattern or food that is making you ill.
chemnut
chemnut
Your symptoms sound a lot like mine. After going GFfor 2 yrs, I started having the same symptoms. I found (after several months) that I had developed an issue with corn as well as gluten. Start a food diary like SunnyBunn suggests. It helped me discover what was going on. I hope you find the answer soon.
deleted_user
deleted_user
CORN - is frequently transported in the same containers as wheat. The do NOT wash these out between grains. SO corn may be safe until it is put into a container that was just filled with wheat.

I forgot that one till just now. SO VERY SORRY!

I think chemnut is right about the corn. If you feel that lousy, cut it out now.

Still the food diary may help you with something less serious that is making you have low grade issues that stress your body to the point where a tiny thing extra makes you really sick.