Interesting, butterfly. Hard to believe anyone would want to go GF on their own. I am sensitive, not Celiac but am on GF and FODMAP and I can't say I enjoy it. I do like feeling better so I try to be good. I could see the danger of thinking I was sensitive and actually be Celiac and make an error, that can cause serious problem. I think consulting a doctor is always the best way to start any new or unconventional type of diet. ( excluding reducing sugar and salt or basic calorie counting to lose weight) Good article.

Doctors watched me slip away to near death with appointments ever month and blood work that was terrible. It was a coincidence that got me into a different "doctor House" type doctor who actually LOOKED at me instead of just the lab report.

They told me for 40 years that I was crazy, anorexic, mentally ill, Fibromyalgia, and a host of other excuses for the pain, diarrhea and constant sickness. If someone had come up to me to explain, I'd have considered going GF without a "real" DX just to stop the pain.

Whatever.

Does this person understand how many of us go undiagnosed because some doctors think all people with CD should look like famine victims? Or they casually say "Oh, no that can't be it, lets order another round of tests." One of my favorite remarks was "If you loose 20 pounds all your problem will go away." Really, even the migraines? Or my all time personal favorite from my long time physician "I can't keep ordering tests with negative results or your insurer is liable to drop me."

I went back to the doctor after TWELVE YEARS of trying to figure it all out and told him I'd done a food challenge that eliminated gluten and finally the diarrhea stopped and the awful gas and bloating stopped and could he please do a blood test if I went back on gluten. His response back in 2006 was "What is gluten." I had to beg him to do a blood test, explain what the test was for, and even once it was positive he wasn't convinced. I went out and paid for the DNA test myself and discovered that I inherited a double copy of a known CD gene.

Did I tell my family they should be tested? Yes. They told me I was nuts. Not a single sibling has been tested for CD because they don't believe in it. So good luck with that aspect of it all.

As for the whole nutrient thing, really? The doctors already knew I was anemic. By the time I was diagnosed I was severely anemic with pernicious anemia and low blood volume. But I HAD TO PUSH FOR THE TEST. I had to figure out what was going on. I lost all faith in Western Medicine as a result, and you'll probably find that many people who go through a dozen or so years of searching wind up feeling the same way.

Bottom line, it's my body. I get to choose what I think is best. I'm in charge of my health and no one else. If she doesn't like it too damn bad.

Articles like the one in this link are written to frighten people from taking charge of their own health. When I read more on the web site, I get the impression that she is focused on some sort of cure so she can be normal and simply wants the rest of the world to support her cause.
This article written by a Celiac who openly admits her own healthy eating choices are truly pitiful! Consider these statements that she makes in another article:
I was at a trade show and stopped by a sponsors booth. They had food out for sampling, and hungry as I was I grabbed a piece and took a bite. The marketing director nearly tackled me trying to knock it out of my hand. It was a sample from their sister brand, and not gluten-free. Should I have asked before taking the sample? Yes, but I made an assumption, and you know how that turns out.

Should you ask the server if they use a dedicated grill for vegetables? Absolutely. But the food has already been ordered, and you dont want to be a pest.

She doles out some wheat crackers on one platter, then reaches into the gluten-free cracker box to fill up the other plate. Do you stop her or do you just hope that her hands werent gluten-y enough to make you sick?

The sauce looks a little thick, and youre wondering if there could be some flour in it. Youre wary about taking a bite, but you dont want to offend her.

When your order is up, you realize that you forgot to ask them to use a clean knife for cutting the sandwich. Theres no time to wait for a new sandwich, and youre pretty sure they know about cross-contamination issues.


This is not something that any doctor or nutritionist can provide the information, tactics and strength needed to stay gluten-free! Like any disease which requires dietary adherence to stay healthy, it is up to us to do the right things and never accept any reason for eating gluten.

In her article about getting tested she talks about social responsibility. Yet, here she changes her tune and ignores the social responsibility of every Celiac to ask for and expect that no gluten ever reaches their own mouth BECAUSE in each of these situations, the Celiac in question taught others that our disease is frivolous.


Please always read more than a single article written by an author before deciding that it is great advice. Anyone can post anything to the WWW. Not all of it is true or even has value.