Celiac Disease Support Group

Celiac disease is an auto-immune disorder of the digestive system that occurs in genetically-predisposed individuals. It is characterised by damage or flattening to all or part of the villi lining the small intestine, which interferes with the absorption of nutrients. This damage is caused by eating anything with gluten (gliadin), a protein found in wheat, rye, and barley...

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yazzy23 02/24/2017

Hello All,

My name is Jasmin and I was recently diagnosed with celiac disease level one through an endoscopy.

I need your help---so my story is that I have been having five months of low-grade fever's and I don't know where or why it's coming from. I've been to so many specialists. They have been of no help nor value.

I would like to know if any of you had low-grade fever's before finding out and going gluten-free. How long have your fevers been for? Yes I would greatly appreciate it if you can share your experience with me.

nanny1611 02/24/2017

Hi, Jasmin, and welcome to this group. The only time I have fevers is when I'm sick or whenever my lupus is trying to flare. Regarding celiac and fevers, I found these articles. Best wishes to you.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4599687/
https://www.hindawi.com/journals/crigm/2013/676327/

lucygirl1 02/25/2017

Been diagnosed for years and am 66. Never had fever associated with celiac.

yazzy23 02/25/2017

Thank you nanny1611 for replying and those articles. I will check them out. I've been going to the doctors and they can't figure out what's going on. The last doctor I went to thinks it's from celiac. However I've read that celiac fevers are intermittent and not for this long.

yazzy23 02/25/2017

Hi luckygirl1,

I'm 35 and just got diagnosed with celiac disease. What is puzzling to me is how does this happen later in life? Especially since this is supposed to be a genetic disease how come it doesn't show up earlier?

BrightSide987 02/27/2017

There are no levels to celiac. That level that you were told is the level of damage that was found on your biopsy. No matter what the level, it will heal on a gluten free diet. I don't know where doctors are getting this misinformation about celiac having "levels". The only treatment is a 100% gluten free diet regardless of the amount of damage at the time of diagnosis

Celiac is auto immune. One of the ways the auto immune system beats invaders is to raise the body’s temperature level to try and kill off the invader. The problem is that that invader is gluten. It needs around 600 degrees for 30 minutes to be destroyed because it is a DNA protein chain.

The body can adapt to a lot of constant damage and continue to function. The fever is likely just the auto immune systems way of trying to fight off this invader.

Doctors are familiar with the run of the mill average events in the body. I believe my own observations a research lot more. When I was diagnosed, there were none who actually understood celiac. I had to learn on my own.

You can do this.

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