Caring For Aging Parents Support Group
Caring for aging parents can be a difficul time as we become the caretakers for our parents. This broad responsibility can encompass such services as assisted living, adult day care, long term care, nursing homes, hospice care, and in-home care. Whether you have just started caring for your parents or just need a place to talk, we're here.
kristybinaz
I am at a point where I need to detach from the situation with my mother for my own mental and emotional well-being. She has been in a nursing home since October. Getting to that point was grueling, but we made it and I have some peace knowing she's being fed, bathed and given her meds on a regular basis.
Unfortunately, she is not adjusting well to this "new way of life" and has given up. She's severely depressed - more so than when she was before this all started. She won't engage with anyone there. She refuses to eat most days and just lies in bed. Her body does have limitations as she cannot sit herself up, walk or do any basic functions without help. She is also legally blind. So, I completely understand her depression and frustration as she has lost total control of her life. (I have PoA over medical and finances.)
I live 2,500 miles away which is partly a blessing but partly adding to my excruciating pain in dealing with this. When I'm there, her mood does pick up but I can't be there every day. Where I struggle is the guilt I feel that I owe it to my Mother to be there in her time of need. I torture myself constantly picturing her lying in her bed all sad. I can't even bring myself to call her because all she will do is complain and tell me how horrible her life is and then I feel worse.
So I'm making a decision to detach from her for a while. I don't know how long it will last but I can't deal with her right now. I guess I'm writing this post to see if anyone else has done this. I'm in self-preservation mode right now and looking for a little "permission".
Who ever thought it would be this hard? Dear God please bless us all.
Unfortunately, she is not adjusting well to this "new way of life" and has given up. She's severely depressed - more so than when she was before this all started. She won't engage with anyone there. She refuses to eat most days and just lies in bed. Her body does have limitations as she cannot sit herself up, walk or do any basic functions without help. She is also legally blind. So, I completely understand her depression and frustration as she has lost total control of her life. (I have PoA over medical and finances.)
I live 2,500 miles away which is partly a blessing but partly adding to my excruciating pain in dealing with this. When I'm there, her mood does pick up but I can't be there every day. Where I struggle is the guilt I feel that I owe it to my Mother to be there in her time of need. I torture myself constantly picturing her lying in her bed all sad. I can't even bring myself to call her because all she will do is complain and tell me how horrible her life is and then I feel worse.
So I'm making a decision to detach from her for a while. I don't know how long it will last but I can't deal with her right now. I guess I'm writing this post to see if anyone else has done this. I'm in self-preservation mode right now and looking for a little "permission".
Who ever thought it would be this hard? Dear God please bless us all.
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If it helps I understand and approve of your actions!
It is hard, taking care of our parents. Some of us get really hard situations, others get rather easy ones. But they are all filled with stress and baggage from out history.
Gentle hugs.
My parent's house is about 5 miles away from mine, so I did not have the distance issue you do. My father was mostly capable of taking care of mom, but he did get confused a bit near the end of her life. Mostly I had to just be there and make sure he did not do anything foolish.
(For example, near the end she was drifting in and out of consciousness at home and he was not sure if we needed to call 911 or not. 'Yes, dad, I think it is time.')
Dad was pretty easy to take care of, but he lost it towards his end and did not fully make the connection between doing his PT and OT and getting strong enough to go home.
Back to my mom. She shared some of the things your mother does: she would not eat much, sometimes almost nothing; she needed help getting up and down, but she was so thin we could do it; she was very likely depressed; she mouthed the words that she needed to eat to get strong so she could go home, but she never did; she was not blind though.
Visiting mom sometimes cheered her up, but the effects were temporary.
How are you doing? Obviously you do not have siblings to help you. Do you have a family of your own to help support you through all of this? It is a very demanding road you are on, and we all can use all the support we can get.
Now for the hard part. It sounds like your mother may be a candidate for hospice care. Have you had that conversation with her doctors? Talking to the doctor about hospice does not mean you have to put her under hospice care; it just means you are discussing her care options to make the best decision you can.
At times it is the only reasonable choice
I did have the discussion about moving her closer. That upset her even more so I try not to push her too much. She wants to die in her hometown. I kind of feel like I should allow her that one last wish.
My brother died 6 years ago and that was the beginning of her depression and withdrawing from life. I don't have any other family except my husband who is supportive but he sees things differently than I do. I also have a sister-in-law and niece but they are not of any real help or support. They have their own lives and have moved on. They came to visit in November and it was a strained visit.
Luckily, I have a job (and an awesome boss) that allows me the time to travel back there. I've been back 4 times since October when this all started. I want to get back in February if I can. Just for a long weekend.
I appreciate you all. Just knowing I'm not the only one going through this helps. Thank you.
One thing I learned is that there is never a "golden option" that is the best for all issues. We just navigate the waters and do the best we can.
Continuing hugs.