Caregivers Support Group
A voluntary caregiver is a spouse, relative, friend or neighbor of a disabled person or child who assists with activities of daily living and assists those unable to fully take care of themselves. The challenges of a caregiver are unique and sometimes it's hard to find people to talk to who know what you're going through. Join the conversation and find others who...
I recently quit working to take care of my husband who needs 24 hour care. I don't know where to begin on this. I know that alot of people here are taking care of elderly parents or children. I have sympothy for all of you. I have just been doing this since the 7th of January and there are days I just want to scream.
Hopefully here I can talk and get out some frustrations.
Hopefully here I can talk and get out some frustrations.
Being a 24/7 caregiver is very stressful and frustrating, but also can be rewarding. You'll find the days will roller coaster--some good, some bad, some so-so. Some days you'll get your do list done and others you will be lucky to manage the absolute necessaries and that's all. One phrase you indicated your husband said was, "he's done." and continued negatively. As you are getting his medical care set up, look into a social worker or counselor to help him regain a more positive outlook. It is not unusual for a person with diabetes to also develop depression, especially when there are complications.
You are already setting up some good things for your own survival as a caregiver. Maintain your outings with your sister or a friend and keep up with other activities you like or want to try. There is nothing wrong with the desire to hole up and stay in either, as long as you recognize that it is another escape mechanism and don't let it become a dominant behavior--a sign of depression. No one likes being incontact with other people constantly. You're off to a good start. Now hang in there. We're with you. rocasi
As the others say, this is a great place with lots of caring people. Ask away... someone always has good experience to share, a laugh for you, or simply a dry shoulder...
It's a very loving and intensive thing you're doing... so you're in the right place for sharing lots of emotional support and practical advice. I am also mostly at home, and helping my husband (who has progressive MS) with a lot of his daily living stuff... not doing 24/7, as he still does what he can (varies every day,) but am "on call" all the time. This community can be a great lifeline for you in the difficult times.
So vent away, or share some laughs.... and remember to love and look after YOU, too! Then you will also be able to keep up the best love and care for your husband. Again, welcome!
Claire