Caregivers Support Group
A voluntary caregiver is a spouse, relative, friend or neighbor of a disabled person or child who assists with activities of daily living and assists those unable to fully take care of themselves. The challenges of a caregiver are unique and sometimes it's hard to find people to talk to who know what you're going through. Join the conversation and find others who...
so no word yet on wether or not the mass is cancer but we do know is this.
the mass is growing rapidly. it is putting pressure on her organs as well as her nerves. this is why she is having issues walking. doc is also saying that at rate this mass is growing it could start to possibly apply pressure to heart and cause complications. so surgery has to be done wether or not this is a cancer mass.
it is attatched to base of spine.so after surgery there will be some swelling which cause her to be paralized.there is an 85 % chance this paralization will be permanent.
so i have taken a leave of absence from work. turned down my dream job as well. we got next friday may 9th for surgery.she will be in wheelchair for sure for about 6 weeks. and then we wait and see if things go back to normal.
when they do surgery if the mass is cancer then she will also have to do radiation within 2 weeks max. this radiation treatment may also prevent healing of the spine bringing her chances of not walking again to 95%.
i dont know what to do anymore.she has threatened to kill herself if she is in a wheelchair full time. she is scared i know. but she is taking it out on me. she is yelling at me alot. she is cranky and very moody.I am doing my best to stay strong but its hard. i dont let her see me cry or worry. but im just falling to pieces.
the mass is growing rapidly. it is putting pressure on her organs as well as her nerves. this is why she is having issues walking. doc is also saying that at rate this mass is growing it could start to possibly apply pressure to heart and cause complications. so surgery has to be done wether or not this is a cancer mass.
it is attatched to base of spine.so after surgery there will be some swelling which cause her to be paralized.there is an 85 % chance this paralization will be permanent.
so i have taken a leave of absence from work. turned down my dream job as well. we got next friday may 9th for surgery.she will be in wheelchair for sure for about 6 weeks. and then we wait and see if things go back to normal.
when they do surgery if the mass is cancer then she will also have to do radiation within 2 weeks max. this radiation treatment may also prevent healing of the spine bringing her chances of not walking again to 95%.
i dont know what to do anymore.she has threatened to kill herself if she is in a wheelchair full time. she is scared i know. but she is taking it out on me. she is yelling at me alot. she is cranky and very moody.I am doing my best to stay strong but its hard. i dont let her see me cry or worry. but im just falling to pieces.
maybe you can try filling the time with distracting things... do some art projects with her that she can do... watch some movies together... (i suggest comedies)... anything to fill the time with something other than worry
if she cant walk again then she cant walk again... she'll adjust and so will you... somehow... some day...
i wish i had better words for you... but all i can really do is send a *hug* to you and to her
and of course, i wish the both of you nothing but the very best of luck
*HUGS*
doing something away from hospital appointments and doctors visits may help. It's so easy to be drawn in to diagnosises and negative thoughts. Hugs for you both xx
Hugs, MelodyJane