Caregivers Support Group

A voluntary caregiver is a spouse, relative, friend or neighbor of a disabled person or child who assists with activities of daily living and assists those unable to fully take care of themselves. The challenges of a caregiver are unique and sometimes it's hard to find people to talk to who know what you're going through. Join the conversation and find others who...

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lowernotes 10/28/2015

Hi All
I have missed being part of this group. I have had a hectic year so far and I am wondering if anyone has ideas on coping with the stress and trauma of caring for a loved one. I am unable to get away as there is no-one to leave with my daughter and no money to do it with either, so I need a way (or several ways) to cope and function at full capacity.

ajm1959 10/28/2015

Sorry for what you are going through. I found that Church and Church members helped me when I had no one. Don't know if you are religious or not but even if you cant go to the church the members will visit and give you some relief. Good luck. Being a caregiver is the hardest job in the world and some just don't get it. hugs Arlene

blueviolet725 10/28/2015

I am in the US, but I saw an advertisement on tv for respite care....I would find out if a charity could pay for some help.
we don't get if we don't ask.
and if there is a social worker at the hospital, perhaps they would know...or a council on aging....there are resources...I don;t know about NZ tho.

HCARD 10/30/2015

I don't know anyone who has been a full time caregiver for more than a short time, that operates at 100%. This job is physically, emotionally and financially draining. We can only give our best at the moment, ask for help any time we can get it. Phoebe, who's been in the trenches says, do anything you can to take time for yourself to recharge your batteries. I still haven't figured out how to do this better,

lowernotes 10/30/2015

Thank you for the support.
Most of the people around us just don't get it. There are a few who really try, and they are precious to us. Taking care of someone as intensively as we do very quickly weeds out the real friends from the rest. Only a real friend will stick around.
Here in South Africa I haven't heard of any respite care, but I will ask around. Good idea.
I have started seeing a counselling psychologist who says I should take up colouring in and tell the negative voices who say I am not doing enough to shut up. She is actually quite good and deals with a couple of patients who are struggling with chronic pain so she knows a bit about what I am dealing with. She also has quite a sense of humour - says I need a holiday !
Basically I need to try and create the rest a holiday would provide in between caregiver duties, running a household and homeschooling an aspie son while fighting off my own fibro aches.
Must be a way - others have dealt with the same or worse:-)

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