Caregivers Support Group
A voluntary caregiver is a spouse, relative, friend or neighbor of a disabled person or child who assists with activities of daily living and assists those unable to fully take care of themselves. The challenges of a caregiver are unique and sometimes it's hard to find people to talk to who know what you're going through. Join the conversation and find others who...
Hi fellow caregivers I am sitting in my Hotel room just feeling so alone. My husband had a shunt put in on Thursday as his brain tumour was not allowing the fluid in his brain to drain. I thought I was lonely when we were at home alone but without him I am lost. It has given me a look into the future when I could loose him. This is truly an offal feeling. I am five hours from home and know no one. My five year old is with me but as he sleeps I just don't know what to do with myself. I spend all day at the hospital trying to keep my husbands spirits up and my five year old quiet I am exhausted but cant sleep. Any suggestions? Sorry for wining I just feel so lost and scared at the moment how will I ever survive when I loose my husband.
You are a brave and loving wife staying near your husbands side, I hope it comforts you knowing he is aware of this and is probably very grateful.Try not to look too far into the future for now and just take it a day at a time my friend.
Please know you can private message me anytime and I will be here for you.
Hang on. Sending big soft hugs, Gwen :-)
I read through some of your posts and you sure have been through a lot. You seem like a strong woman. I know, in the moment, in the middle of feeling lonely, it probably doesn't feel that way. But you are Strong! Recently, in my difficult moments, I have found comfort in the simpleness of singing a song. For me, it's songs l learned in college during chapel or in church. I sing them to myself or outloud if appropriate. Amazingly, they bring comfort and releives some stress. Music soothes the soul.
Hugs,
Spatchie