Hello, im new to this forum but glad im found it as im hoping someone can shed some light as to what is going on with me...............Iam a 36 year old mum of 3 and about 3 years ago i lost 2 stone in 1 month and the problems started. had vague lower abdominal pain and facial flushing, had colonoscopy and laporoscopy all normal, few months later pain accross my back right side pins and needles and numbness, went to neurologist all tests normal. was refered to rheumotologist for auto immune issues, all bloods normal. xrays show hyperinflated lungs with hyperresonant notes and crackling was refered to gastroentologist for severe central upper abdominal pain, has ruled out gallstones....... Had upper endoscopy and a submucosal bump was found on the greater curvature of the stomach, ct showed thickening of stomach wall. The lump looked like that of a carcinoid tumor, but the gastroentologist said it couldnt be because the symptoms of diarrorea flushing wheezing etc can only happen if the tumor has metasasis to the liver and my liver was fine and refused the hiaa test.......so the Gastroentologist carried out endoscopic ultrasound which showed nothing the lump had gone??? have been told that it was probably the spleen indenting or another organ and no further investigations are needed, but im in soooo much pain, its difficult to exhale as the pressure and pain at the top of my abdomen is so bad, am taking co codamol, lansoprazole and recently anti spasm medication, but non of which seem to help.......my tummy gurgles and growls constantly whether i eat or not and the pain is so uncomfortable and I just dont want to eat anything, i have tried gentle excercise and eating small meals during the day and am very careful with my diet but I just get worse, im tired all the time and feel very groggy....i have followed the ibs rules and diets but they dont seem to help and it does not seem to fit the pattern of ibs.......Im desparate to get better but no one can help me right now so I just dont no what else to try.......I am also currently with a lung specialist as was coughing up blood in july, from tests etc my small airways are narrowed and have been given an inhaler....had a chest ct scan and there were no obvious tumors......My question is that in order to get carcinoid symptoms of flushing etc must it have gone to the liver ???? I am so worried that on when they have gone back and done the 2nd endoscopy with ultrasound, it has just been missed as I was constantly gagging and struggled alot ( not sure why the first one I was ok ). And is it normal for one organ to indent the stomach wall during an endoscopy ??????? thankyou so much for any help you can give me :)
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