Brain Aneurysm Survivors Group Community Group
A group to comfort fellow brain aneurysm survivors. We seek to relieve the anxiety about what survivors think about their progress on the way back to full health, work, and so on.
A group to comfort fellow brain aneurysm survivors. We seek to relieve the anxiety about what survivors think about their progress on the way back to full health, work, and so on.
I still have some panic moments where the slightest little twinge in my head will give me pause. I also feel that I it effected my short term memory. I seem to have to write everything down now - lists are everywhere. My husband will assure me we discussed something and I have absolutely no recollection. Anyone else experience this? I am still very tired and feel much better if I can lie down midday for about two hours (which isn't always possible). A year post surgery and still fatigued. Anyone else still tired and having headaches this long after surgery? I'm 39 and wonder if I will always feel this way.?
Life flighted from Jasper to Evansville - had a wonderful team from Deaconess Gateway hospital care for me....the neurosurgeon was outstanding....Had coiling....very lucky....
But Melissa - I have to agree with you - I experience a lot of problems with memory and at first I was very concerned about any twinge I felt in my head as well......Since my cerebral arteriogram a couple of weeks ago with a clean bill of health, I feel pretty good but sometimes I can't help but wonder.......I am more tired than I was preSAH but.....I try to make do....I'm going to have a work-up on my TSH levels.....I've gained about 12 lbs. since November (unusual for me).....
Memory seems to be the biggest problem.....lots of lists and problems recalling......
Would love to talk more about this....I'm glad I found a more up-to-date group! Thanks for being here....Its unfortunate we experienced the aneurysm but glad that we are all here to share.....
Thanks.
Have a great day!
Lori
I also had so many TC scans with no resalts and only when I had an MRI they found the Aneourysm and a brain surgery was performed , 3 titanium clips where used and my long term memory was impairment .
I have not been feeling well again and the frightful thing is that i had to have CT scan because if you have titanium clips they will not do an MRI .
Are you on any medication?
Please keep up sending your stories it helps so much
I pray for all of us!!!!!l
I have no memory of that part other than the paramedics being in the room, unable to see because everything was a glaring white and calmly trying to figure out what was going on only... well... it didn't seem like I could think.There were just flickers of thought now and then. Awareness that I was being slid into an ambulance, suddenly aware they were wanting to take me to a hospital where I'd had a bad experience and startling my husband and the attendants by ordering them to take me to "my hospital" where I'd had treatment for breast cancer two years before. Yes, I am a breast cancer survivor also.
When I arrived, they thought at first it was simply a stroke but a radiologist spotted the 2mm rupture. The neurosurgeon later told me that was what saved my life. I have a titanium coil.
For the next seven days, I have only the briefest fragments of memory. My husband is happy about that. He feels it is better that I don't remember those days and he was relieved to find I do not.
After that, I progressed very rapidly. When I first "woke up", I was disappointed to learn they were going to move me back into ICU but was told that due to the weekend and holidays, they wanted me where a closer eye could be kept on me. I went back to ICU on Friday afternoon and was released from ICU late Sunday afternoon.
I'm told that I was very lucky. The rupture occurred the evening of December 10th. I was released from the hospital on December 22nd and they had determined that I needed no physical therapy. I went back to my job as a second grade teacher on January 22nd.
Things seem to be going well. I haven't suffered headaches and I haven't noticed too many memory issues... at least nothing worse than what I have experienced since chemo.
The hardest part for me is not being able to do as much as I used to and tireing easily.. I am here to see my kids grow up and for that I am defininely gratefull.
It is wonderful to learn you are not alone! It is good to know there are other survivors and to share stories and experiences. Especially, those of people who have been a survivor for awhile. They tell me there are no more aneurysms. They tell me that mine may have been there since birth and it will never happen again but.. yeah... it does lurk in the back of my mind... sort of like the cancer. Now I get to see both the oncologist AND neurosurgeon this summer. On the other hand... I get to SEE them and when you look at that from that perspective... that is a good thing LOL! It really is.
This was brought home to me very clearly last Saturday when I was sitting at the wedding of my son. Last December, his bride (who lived over 350 miles away) rushed here as soon as she got off work when she heard about my SAH and last week... last week I danced at their wedding. I have much to be thankful for!
I suddenly began to have lower back pain and a stiff neck. Then the thunderclap headache, violent vomiting, and cold sweats, I was screaming out for help; I knew something was terribly wrong. My 24 year old daughter and my husband stood at the end of my bed as I began to seize. I told them that they should call 911; I kept saying that my brain exploded. The emergency services and local police were in my bedroom taking my vitals and asking me questions. They asked if I had been drinking the night before, I said yes, we had had a holiday party. Which lead them to the conclusion that I drank too much and must be hung over and dehydrated. My daughter argued with them. âI know my Mother better then anyone and this is not the result of drinking.â I had another seizure.
I was taken by ambulance to a local Hospital and given a CAT scan; they saw the bleed but were unable to treat me. I was then airlifted to Jefferson University Hospital in Philadelphia and had surgery the next morning (15% survival rate). Vasospasms and other complications followed. I was in the neuroscience intensive care unit for 28 days.
This event has completely changed my life.
It has been ten months, The headaches, fatigue and anxiety come and go. Physically I am gaining strength every day. My brain is foggy and memory is shot. Can't spell lost my math skills and can't seem to make decisions. I get confused easily. I'll keep working on it.
They shaved my head and told me I can't use any products on my hair for 1 year post op. Therefore the silver hair. It's growing on me!!!