Blindness & Visual Impairment Support Group

Blindness is the condition of lacking visual perception due to physiological or psychological factors. This is the group to discuss living with blindness, sharing experiences, and for those that may be facing the prospect of a life without sight. Find support and answers among people who know what you're going through.

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  • hmmmingbird

    New and need some resources

    My significant other recently had a flu shot, two days later he was in the hospital with optic neuritis, which is a rare side effect of the flu vaccine. Solumedrol gave him no relief. They tried again and he is tapering off prednisone now, but will probably not regain sight in that eye. Since the left optic nerve is connected to the right one, he has extreme light sensitivity and is wearing...
  • Sampow

    Dominant Optic Atrophy

    Hi, I have been recently diagnosed with this condition & would like to hear from other sufferers.. 
  • I had a missed epidural on the 15th November 2016 to have my daughter and since then I have had numbness on my right hand side of my body which is now subsided. I also have lost some hearing and now have severe photophobiaand losing vision
  • Hi, I am new to this group. My mom was just diagnosed with wet eye mascular degeneration and it has been difficult for me as a daughter to know what to expect and how to prepare for the future. I am in panic thinking that she could go completely blind. Based on what I read and viewed on youtube, it seems that is unlikely to happen. I hope that is true. I was up last night worrying and worrying...
  • mtfuji

    Dorzolamide Timolol (Actavis)

    I wonder if anyone else is using Dorzolamide Timolol (Actavis) 2 x a day for their glaucoma? If so, have you noticed the 10ml bottle never seems to last 45 days?
  • sharaninmd

    Looking for support and suggestions

    I am currently blind in my right eye and have low vision in my left eye. I have extremely scarred corneas, therefore, I am at risk for losing more or all of my vision in my left eye. Much anxiety constantly worrying about my left eye as I would be totally blind if the eye worsens. This causes a of depression and anxiety. Trying to think more positive and be thankful for what vision I have,...
  • Keepingaxe

    Long cane modifications

    Hi I am an engineering student and I was wondering if I could ask people here what they think of my project ideas the basis of my project is to help blind people locate or keep hold of their long cane.Idea 1. Is a long cane with a glove which attaches to the handle Idea 2. Is a long cane which has an electromagnet that connects to a magnetic glove.Idea 3. Is a module that straps onto any...
  • ramzes.ra

    Retinitis Pigmentosa (RP)

    Hey guys, i am 16 years old and i am from Bulgaria. I was diagnosed with RP two years ago. i tried to find people with the same problem like mine, but i didnt :(. Specially in my country we arent very much. The problem is that i ralise what can happen, but i alway ask myself: Why me?. I know, it sounds like i am a character from a movie, but i really feel it like that. I mean i had other health...
  • Bernberngirl

    New here

    Hi,I've been visually impaired for a couple of years now. It has taken me a little time to get used to this. I am adjusting, but I wonder if I am the only one who has experienced loved ones who have a hard time adjusting to the change. I realize my disability is not temporary and that's ok with me. I'm learning to live with it.
  • Noxx


    Hi everyone. As someone who is legally blind, the idea of independence looms large for me. I suppose we all rely on someone to one degree or another, but how dependent is too dependent? As caretakers, do you ever feel burdened by the visually impaired person in your life? As a VIP, do you ever chafe at how much you have to rely on someone else? I dislike the thought of being anyone's burden,...
  • im not sure if this right group or not first time here. I have been having tempoary blidness and muscle spams around my temples of eye.I went to eye doctor and was told i have a huge amouint of pressure of eye but he wasnt sure what it is from. I am getting kind scared of this speically since it happens off and on all day long has been more frequent.Its getting hard to see out of my left eye the...
  • kjean345

    Unable to Work

    I haven't spend a terribly long time with my eyes in this state, and I haven't worked an actual job since it happened. It's now time for me to start, but I'm really unsure if I can do it. It's fast food, where I'll need to be able to make things fast and keep the line of people moving well. I can only look at one thing at a time, such as if I'm making something and focusing on what's in front of...
  • deleted_user

    May lose my eye

    I fought hard for over a year, enduring four surgeries and countless office visits, dilations, b-scans, and angiographies. I;ve had 2 victrectomies, a gas bubble and currently wear a scleral buckle. But today, I found out that my PDR is progressing to the point that I might lose my eye. The eye is ischemic, and worsening NVI is still causing traction on the retina. So my options are do...
  • debas

    eyelids sewn shut

    I recently had my eyelids sewn mostly shut by eye dr. to allow corneas to heal. Ha anyone else had this don? So far it has been very painful and I will not know if there is damage to my corneas until the stitches are removed which will be in about 2 mtgs.
  • wesleyscott

    Someone who understands

    Through my first twelve years of life i was told I would be blind by the time i'm twenty years old. I have multiple diseases cause my terrible eye sight, retinal detachment is a major one, followed by nystagmus, astigmatism, night blindness, and last but not least near sightedness. When i was thirteen a retina speacialist finally help me out a little (i guess you could say) I had scleral buckles...