Bedwetting Support Group

Bedwetting (or nocturnal enuresis or sleepwetting) is involuntary urination while asleep. It is the normal state of affairs in infancy, but can be a source of embarrassment when it persists into school age or the teen or adult years. Find others who are coping with a bedwetting problem and share your experiences and questions.

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/ Bedwetting Support Group

Sleep study - anyone do it to see bedwetting cause

shinann
shinann
So my 14 year old bed wets just about every night. Anyway, he also has really bad insomnia and ADHD so we are doing a sleep study to see if he is getting enough REM sleep and the doctor mentioned they could see what happens with the bedwetting since we can't really figure out a pattern to the wetting. He has NEVER been dry at night. Once in a blue moon we have a dry night. He takes .6mg Desmo at night but that does no good and neither did bedwetting alarms (he sleeps thru them) and no matter how hard I try to cut off drinks in the evening he sneaks and drinks and eats at night when he can't sleep and we are in bed .

Has anyone ever done a sleep study and gotten info on the wetting or help? For his sake I hope we can fix this before he gets to college but since its been 14 years, its not looking good...especially when I see on this board so many adults who simply have this problem for life. I guess I am just discouraged and looking for advice, help suggestions - not sure what else to try or expect.
nicolas2
nicolas2
Hi - sorry to hear your son has primary nocturnal enuresis [PNE] - you will find some facts & figures about this problem I have collected on my Journal. The sleep study sounds an excellent idea, as it seems to be classed by medics as a "sleep disorder", rather than just a bladder problem. They do have success with alarm & desmopressin combined too. Hopefully others may have personal experience of the sleep-study? I do hope you get some help from it. Good luck!
sunnydays22
sunnydays22
Hi Shinann - my son did the sleepstudy when he was 17 (not too long ago). It was my last hope as he has been battling enuresis forever. A few years ago I had come across one, and only one blog from a mom whose son was found to have sleep apnea and a use of a cpap to help her older sons (he was 21) enuresis . That blog was my inspiration to do this. All these years I went to a urologist and it was not urology related. Nor do we think its genetics. Anyway putting hormones aside, the kid was always tired...something wasn't right...we did a sleep study (via a pulmonologist) and found out ALOT. My son ended up having obstructive sleep apnea. They feel this could also why he has anxiety (ADD like symptoms too). He was also found to be in the various stages of sleep for an unbalanced amount of time so actually he had sleep deprivation too!! Deep sleep (like lots of teens do) does not mean a good sleep. We were advised to get a CPAP and we did but then found that he had a deviated septum (full blockage) from an allergist (so CPAP wasn't efficient). Then he said to go to ENT. He diagnosed him and now he will undergo deviated sep repair, tonsil removal (they were swollen) and adenoids. Can keep you posted. It should help the sleep apnea - we hope. There are studies done on Enuresis and Sleep Apnea and Enuresis and Tonsillectomy. Google them. I am NOT a medical person so time will tell if the surgery helped....It is controverserial but some medical professionals do believe their is a correlation. My ENT and Pulmonologist did. Please private message me if you want to discuss more!!!! Hang in there!!!!
alexperfectstart
alexperfectstart
I never understood things that were behind bed wetting until I started learning about how if your body is getting a lack of oxygen when you fall asleep that it goes into fight or flight mode and will pull oxygen from your other organs that it deems less important than your brain (I.E the bladder). When the bladder doesn't have enough oxygen it becomes a toxic environment and it discards it. Nothing to be ashamed of, just a lack of air to your brain. I have one Mom who tell's the story of her son (https://www.youtube.com/watch?v=Sk5qsmRyVcE) and it reminds me so much of your daughter. We are helping people with it all over the nation, I have a webinar if anyone wants to view it listed here:
https://www.facebook.com/events/829187097168977/
Also we are hosting a workshop for parent's in the Rancho Cucamonga Area on Monday June 29th, here is the details if anyone is interested:
https://www.facebook.com/events/846205978761733/
ldspeeddemon
ldspeeddemon
We have not done this yet, but our pediatrician wants our 9yo to have one sometime this year. He believes that this will give us some insight as to when the bed wetting is occurring, how she is sleeping, and if there are any other medical issues that may be at hand. We've gone to a urologist who believes she will grow out of it in her own, but trying telling a 9yo that.