Autism / Autism Spectrum Support Group
Autism is classified as a neurodevelopmental disorder which manifests itself in markedly abnormal social interaction, communication ability, patterns of interests, and patterns of behavior. Although the specific etiology of autism is unknown, many researchers suspect that autism results from genetically mediated vulnerabilities to environmental triggers.
Intro: 3 yr. old twins recently diagnosed...
Ayreish
...and we're possibly in denial! My boys were introduced to an Infant and Child Development specialist and Speech Pathologist well over a year ago. They are a little behind in some of their developmental areas and it was recommended we get them assessed. Just a couple weeks ago we received the diagnosis, and even then I was asking how accurate it is because the therapists see the boys a couple hours every so often and none of them are seeing them at home to get a full picture. The doctor tells us he's usually around 95% right, and while they are a mild case, he feels there is enough red flags to put them on the spectrum. But, what has me in denial is that a lot of the flags are also typical behaviour of every other 2-3 yr. old I've ever met! Child has a tantrum because he didn't get his way... he's 3! Child doesn't want to listen to directions because he's busy doing something more fun... he's 3! There are some flags that I do agree with like the spinning, being fixated on things falling through their hands (like sand, rice, water), etc. Right now I feel a little overwhelmed with all of the services and programs now available to us with an official diagnosis. I feel a little upset because the reports make the boys sound much worse than they actually are since it was based on what was seen that day and not so much what we see every day at home. I'm a little frustrated with some of the services provided because they have their plans for the boys, but they don't seem to be coordinating with the other service providers or the person I have designated as our coordinator! People keep reminding me that the label doesn't change who the boys are, they are still my sweet and very active little boys. I know it doesn't change them, nor does it change how I feel about them. What it does and has changed is how other people are responding to them! Now they're "special" and need extra help, and seemingly have a lot of issues excused because they're "Autistic". Now we're looking at doing numerous therapies and programs, which is fine for them but maybe not so much for us as parents. As one of my friends had told me when we were discussing all of this, when she first found out her son had autism and went through all of this, she ended up getting burnt out because she was saying yes to everything and was so focused on being the "therapist" she forgot how to be his mom. I'm starting to feel the same way and we haven't actually started to increase any of the work yet! I want to do what's best for my kids and make sure they get all the help they need, but, I also want them to enjoy being kids and have fun with us instead of worrying about which therapy we're trying next. And on top of it all, I have my own issues with anxiety and depression so it's been even more difficult to adjust to. I guess I just kinda feel lost right now...
zoey200823
They (assessment people) have tried to tell me the same thing with my son. I'm in denial too as he's doing something you've mentioned but after she told me that he should know almost 2000 words (not matter what research I've looked into it says max 500 for a 3 year old) yes he's behind in words but they only saw him for maybe 30 minutes. We've been working on a few things with him and he's constantly counting to 10 (different patterns we give him) and he's saying a few phrases. it is overwhelming take it one step at a time. the one thing that was recommended was introduce him to play groups in our community. i'm here if you want to talk
Ayreish
The boys are in daycare 3 days/week for the full day, and they do get to go to a play group or have a play date once in awhile. They are always counting, saying the alphabet, and singing songs they really like... although maybe not all clearly. We'll be starting PECS soon, so hoping it helps the one who is saying very few words and strengthens the other's vocabulary. It's just a lot to deal with right now.
zoey200823
defiantly a lot to deal with. hugs chicky one day one step at a time.
elga
Sending positive thoughts and hugs your way:) My twin sons were also diagnosed with autism when they turned 3 and although I kept the therapists on board for a few years after, I remained for the most part in denial. In the first part of elementary school I refused to put them into special ed; no child of mine would ever, ever be in a class such as that! Gradualy, however, we all noticed as time wore on an increase of disturbing behaviors and I finally had to go against everything I believed in and put them in a special ed class and now I have moved them to a very wonderful school just for autistic children as I have finally grown to accept the fact that this is who they are.....it took me forever and I still can't believe that this is the way things are. They are both in 4th grade now and we still have a road ahead of us, but in my case when I finally just stopped fighting and fighting the diagnosis it made it somewhat easier for me to deal with it. I pray that your situation is different and maybe they possibly misdiagnosed your sons.....just take it one day at a time and refuse to believe anything anyone tells you until your gut tells you the truth. Time will tell; please don't let them rush you into any diagnosis. I will keep you in my prayers:)
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