Atrial Fibrillation (AFib) Support Group
Atrial fibrillation (AF or afib) is an abnormal heart rhythm (cardiac arrhythmia) which involves the two small, upper heart chambers (the atria). Heart beats in a normal heart begin after electricity generated in the atria by the sinoatrial node spread through the heart and cause contraction of the heart muscle and pumping of blood.
What I did when I found out was call my best connection in a big city and asked for a referral for the best surgeon I could find. I figured that the key thing if I ended up in surgery (which I haven't yet) was to get the best surgeon I could find.
The best are at the Mayo Clinic (big surprise) but there are very good ones in all the major cities. Afib is a big money maker - which is good for all of us who have it. Then, I made the commitment to start with this doc and travel to him (for me about 90 minute drive). Then I started reading all about it. I recommend the Framington Heart data site. Here is a link to get you started:
http://www.framinghamheartstudy.org/risk/atrial.html
In my case, since I am tall and athletic, it was easy to find out lots of info about people like me with afib. Once you teach yourself about this problem, you will begin to feel more in control and less adrift. There is a lot of info on the web, you just have to dig in and spend the time.
The good news is that since is it a relatively common thing, and money to be made, there are a lot of treatments and pretty good consensus about what to do. I have a friend who has a very rare form of cancer and he is in a very rough spot - everything is experimental and the docs contradict each other almost every day regarding treatment.
hope this helps, be well, good luck. Rich (72, very active, diagnosed 8/2009)